Skip to main content

Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

Back to top

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

Back to top

IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

Back to top

FOR PARENTS, KIDS AND TEENS

Back to top

For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

Back to top

For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

Back to top

You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

Back to top

GP Audit and Education Module

Click here to find out more.

Back to top

The latest news and Research

News

Unique imaging technology to map cells tied to inflammatory bowel disease

Posted: September 24 2021

New “maps” of hundreds of thousands of cells related to inflammatory bowel disease shed greater light on their effects on intestinal tissues through a newly utilized imaging technique called “imaging mass cytometry.” The novel findings by researchers at the Perelman School of Medicine at the University of Pennsylvania provide a possible path to better targeted […]

Read more

News

Statins may be effective treatment for patients with ulcerative colitis

Posted: September 23 2021

By Hanae Armitage There may be good news for the nearly 1 million people battling ulcerative colitis, a type of inflammatory bowel condition with no real cure: Statins, a commonly prescribed cholesterol-lowering drug, seem to be an effective, if unexpected, treatment for the condition, according to a new Stanford Medicine study. Currently, the only lines of defense […]

Read more

Blog

Here’s how Crohn’s disease can affect your eyes

Posted: September 17 2021

By Leandra Beabout  Some folks might experience sensitivity to light during a flare-up. But can your gut actually mess with your vision? Is there a link between Crohn’s disease and your eyes? It turns out, your body parts might be more interconnected than you think. Can Crohn’s disease really affect your eyes? For some folks, yes! Crohn’s is classified as […]

Read more

Research

Novel mechanism links genetic defect in IBD patients to gut leakiness

UC Riverside-led study in mice and human tissue is the first to show how a disease mutation weakens barrier properties of epithelial cells lining the gut

By Iqbal Pittalwala A team of researchers led by a biomedical scientist at the University of California, Riverside, has identified a novel mechanism by which loss-of-function mutations in the gene PTPN2, found in many patients with inflammatory bowel disease, or IBD, affect how intestinal epithelial cells maintain a barrier. The intestinal epithelium, a single layer […]

Read more

Blog

5 Great nutrition apps that can help you manage IBD

Posted: September 16 2021

By Elizabeth Yun If you’re like many people with inflammatory bowel disease (IBD), you may have noticed that what you eat can directly influence how you feel. (Ever eaten a bag of trail mix and had stomach cramps the rest of the night?)  Since IBD affects the gastrointestinal (GI) tract, your diet plays an important role in keeping […]

Read more

News

Precursor to ulcerative colitis in healthy individuals years before onset of disease

Posted: September 10 2021

By Maria Elisson Ulcerative colitis is an inflammatory bowel disease (IBD), with symptoms normally setting in between late adolescence and the age of 30. What causes it is not yet known, but there is lots to suggest that the disease is a result of an interplay between genetic and environmental factors and that gut flora […]

Read more