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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

To help IBD symptoms, target your microbiome with these foods

Posted: January 28 2020

A recent study on a new diet called the IBD-AID diet has shown that it may help. The diet focuses on correcting gut bacteria balance with probiotic and prebiotic foods. “Diet has a huge impact for IBD,” said Dr. David L. Suskind, a gastroenterologist with Seattle Children’s Hospital. He wasn’t involved in the research, but currently studies how […]

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Research

A brief history of human disease genetics

A primary goal of human genetics is to identify DNA sequence variants that influence biomedical traits, particularly those related to the onset and progression of human disease.

Genetic discoveries have substantially improved our understanding of the mechanisms responsible for many rare and common diseases and driven development of novel preventative and therapeutic strategies. Medical innovation will increasingly focus on delivering care tailored to individual patterns of genetic predisposition. Main For almost all human diseases, individual susceptibility is, to some degree, influenced by genetic […]

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Personal Story

Crohn’s disease dragged my body to a point where it barely functioned

Posted: January 23 2020

Today, I am healthier than I have been in a long time. But even so, this summer break alone has seen me in hospital twice to have abscesses removed, an outpatient flexible sigmoidoscopy​, which is an exam to evaluate the lower part of the large intestine, and an MRI. The days are dwindling until the first […]

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News

What anyone with ulcerative colitis needs to know about colorectal cancer

Posted: January 23 2020

Having a chronic illness like ulcerative colitis affects your health in so many ways, from the daily issues, like terrible pain, to the big picture, like an increased risk of colorectal cancer. The connection between ulcerative colitis and colorectal cancer can be scary and confusing, but it’s an important one to understand. Here’s what you need to know […]

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Research

Adding curcumin to mesalamine may benefit patients with ulcerative colitis

Adjunctive therapy with curcumin was found to provide a greater clinical benefit than placebo in patients with ulcerative colitis (UC) being treated with mesalamine.

To investigate the potential antiinflammatory properties of curcumin, study authors searched various databases (PubMed, EMBASE, Google Scholar, SCOPUS, and Web of Science databases) to obtain randomized controlled trials assessing its use as combination therapy in the treatment of mild to moderate UC. “The outcomes assessed were the pooled odds of clinical response and remission as well […]

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News

Investigational hyperbaric oxygen therapy (HBOT) indications: inflammatory bowel disease

Posted: January 23 2020

The recent HBOT experience HBOT for ulcerative colitis Until this point, all of the papers have concerned advanced CD, and none have combined UC cases in the mix. Pagoldh et al. designed a prospective, randomized, open-label clinical trial for HBOT intervention and UC, published in 2013. The primary objective of the study was to assess effects […]

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