Skip to main content

Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

Back to top

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

Back to top

IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

Back to top

FOR PARENTS, KIDS AND TEENS

Back to top

For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

Back to top

For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

Back to top

You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

Back to top

GP Audit and Education Module

Click here to find out more.

Back to top

The latest news and Research

Research

Risk for reduced bone mineral density in patients with ulcerative colitis

Patients with ulcerative colitis (UC) have reduced bone mineral density (BMD), regardless of steroid use, according to results from a meta-analysis.

In order to assess the relationship between UC and BMD, the investigators collected data from 13 cross-sectional studies published before August 2019 by searching PubMed, EMBASE, and the Cochrane Library. The meta-analysis comprised 570 patients with UC and 584 control individuals. The included studies, when pooled, indicated a decrease in BMD in patients with UC on the […]

Read more

Personal Story

Tahlia Giumelli reveals her private battle with Crohn’s

Posted: March 30 2020

MISS Universe Australia finalist Tahlia Giumelli had to reveal her private battle to her new boyfriend, Rabbitohs star Tom Burgess, before they began dating. Giumelli, who will compete for the prestigious crown in Bali in June, lives with Crohn’s disease, which she has battling since 2013. The 24-year-old has been dating Burgess for six months […]

Read more

News

Cumulative doses of oral steroids associated with increased hypertension

Posted: March 24 2020

In a cohort of 71,642 patients (mean age, 51 years; 38% men; 86% white) diagnosed with one of six chronic inflammatory diseases — inflammatory bowel disease, rheumatoid arthritis, polymyalgia rheumatica, giant cell arteritis, vasculitis or systemic lupus erythematosus — 34.8% developed hypertension during a median follow-up of 6.6 years. Researchers found that compared with periods of nonuse, […]

Read more

Personal Story

What it’s really like having a disability no one can see

Posted: March 20 2020

My name is Billie and I live with a chronic invisible illness and disability. I was diagnosed with Ulcerative Colitis (UC) at the age of 20. UC is a gut condition that effects the large intestine; causing bleeding, inflammation and ulcers along the colon. Ulcerative Colitis is also under the umbrella term ‘Inflammatory Bowel Disease (IBD)’ and […]

Read more

News

Antidepressants could ease pain for sufferers of inflammatory bowel disease

Posted: March 19 2020

Deakin University Associate Professor of Psychology Antonina Mikocka-Walus says more needed to be known about prescribing antidepressants for IBD, including for those who do not have anxiety or depression. While between 10 per cent and 30 per cent of people with IBD use antidepressants in Western countries it is unclear how many take them specifically […]

Read more

News

Telehealth assists infection control

Posted: March 18 2020

The six-month measure is part of the government’s plan to address the pandemic, allowing eligible Australians to access essential health services from their home while in quarantine or self-isolation. It is hoped that the strategy will reduce the risk of viral exposure to vulnerable members of the community. Who is eligible for telehealth services? People […]

Read more