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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our What’s On page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

Personal Story

How the Expectation for Men to Be Tough Affected My Crohn’s Disease

Posted: March 22 2019

Boys are tough; boys don’t cry; boys play football. Pain is not something a boy experiences unless he is mortally wounded. Tough it out. Another child of many millions growing up with a gendered brain. Afraid of myself, my own emotions. Afraid of expressing weakness and pain. We’ve shamed the admittance of pain and idolized […]

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Research

Link Between Celiac Disease and Inflammatory Bowel Disease

Previous studies report a possible association between IBD and celiac disease; however, this link is controversial.

Using the search terms “inflammatory bowel disease” and “celiac disease,” researchers identified initially 1525 publications. In total 27 studies met inclusion criteria. Proportions and 95% confidence intervals (CIs) for the prevalence of IBD in celiac disease and vice versa were compared with published prevalence rates for the respective geographic regions. It was concluded that the […]

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Personal Story

Woman with Crohn’s disease ‘learned to love’ her scars

Posted: March 13 2019

Natalie who has Crohn’s disease has asked photographers not to remove her scars from pictures when she works as a model. Now she wants to encourage others to be body positive. Watch her story at https://www.bbc.com/news/av/uk-england-wiltshire-47495346/woman-with-crohn-s-disease-learned-to-love-her-scars

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News

Low-calorie ‘fasting-mimicking’ diet has potential to treat people with IBD

Posted: March 13 2019

What if a special diet could reduce inflammation and repair your gut? USC researchers provided evidence that a low-calorie “fasting-mimicking” diet has the potential to do just that. Published in the March 5 edition of Cell Reports, the study reports on the health benefits of periodic cycles of the diet for people with inflammation and indicated […]

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News

Dandruff could be a crucial factor in Crohn’s disease

Posted: March 13 2019

A fungus linked to dandruff may be a crucial factor driving the chronic stomach condition Crohn’s disease, according to a new study. Malassezia yeasts found in oily skin and scalp follicles are linked to skin conditions, including dandruff. Researchers discovered that the fungus commonly found in human hair follicles also resides in the gut. In […]

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Research

Potential new therapy for Crohn’s, colitis identified

Alternative to anti-inflammatory therapies reduces IBD symptoms in mice

Researchers have found a compound that may treat inflammatory bowel disease without directly targeting inflammation. The compound tamps down the activity of a gene linked to blood clotting. They discovered that the gene was turned on at sites of intestinal inflammation and damage, and blocking its activity reduces IBD symptoms in mice. The findings, published […]

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