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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

Personal Story

What moving to South Korea taught me about managing life and health with IBD

Posted: December 3 2021

By Sarah Breann Dinwiddie When the blogs I read warned there would be no central air, they didn’t lie. I shoved my face into a handheld fan, sweat dripping, a lanyard with my name on it hanging around my neck. It was 2018, I had been living with Crohn’s disease for over a decade, and I was […]

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News

Study links stress to Crohn’s disease flare-ups

Posted: November 29 2021

A possible link between psychological stress and Crohn’s disease flare-ups has been identified by a McMaster University-led study. Researchers using mouse models found that stress hormones suppressed the innate immune system that normally protects the gut from invasive Enterobacteriaceae, a group of bacteria including E. coli which has been linked to Crohn’s disease. Key to innate immunity is […]

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Blog

8 Ways to enjoy holiday parties with IBD

Posted: November 21 2021

By Holly Fowler Whether it’s avoiding trigger foods or dealing with fatigue, having inflammatory bowel disease (IBD) makes it tricky enough to navigate social environments, like holiday parties. Add in pandemic-induced social anxiety, and we have a very challenging situation on our hands. Maybe it’s the eternal optimist in me, or the little kid in […]

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News

Personalised treatments for ulcerative colitis remission

Posted: November 19 2021

Although defining what constitutes a normal or healthy microbiota remains a current challenge in the field, scientists have suggested that the human-gut microbiota relationship is in a stable state of homeostasis that when perturbed moves towards another pre-disease or disease stable state that is more susceptible to the development of chronic diseases. Such observations resemble the behavior of […]

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Blog

Are there certain foods to avoid with ulcerative colitis?

Posted: November 19 2021

By Kathryn Watson and Natasha Lavender The minute you’ve been diagnosed with ulcerative colitis, you may find yourself swamped with information about foods you should avoid and how to eat the “right” things to keep your symptoms in check. It’s true that anyone with inflammatory bowel disease (IBD) has different triggers that can make the condition feel so much […]

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News

A new tool for studying COVID’s impact on gut health

Posted: November 9 2021

By Lindsay Brownell Most of us are familiar with COVID-19’s hallmark symptoms of a loss of taste or smell and difficulty breathing, but a full 60% of patients infected with SARS-CoV-2 also report gastrointestinal symptoms (GI) such as nausea, diarrhea, and stomach pain. Infection of the gut, which expresses high levels of the ACE2 receptor […]

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