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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

Real advice for parenting through UC

Posted: July 6 2020

Plan for Flares “I have a 6-month old, and I recently experienced a severe flare,” says Jamie D., of Chelan, WA. “I knew I was going to need a plan for when I was running to the bathroom 10 times a day on the days my husband was gone. (He’s a firefighter, so I’m home […]

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Research

The microbiome in inflammatory bowel diseases

From pathogenesis to therapy.

Inflammatory bowel disease (IBD) has become a global disease with accelerating incidence worldwide in the 21st century while its accurate etiology remains unclear. In the past decade, gut microbiota dysbiosis has consistently been associated with IBD. Although many IBD-associated dysbiosis have not been proven to be a cause or an effect of IBD, it is […]

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News

Cloning stem cells to find a cure for Crohn’s disease

Posted: July 6 2020

For over a decade, Wa Xian, research associate professor of biology and biochemistry at the University of Houston Stem Cell Center, has been perfecting technology for cloning stem cells. Now she is using it to take aim at pediatric Crohn’s disease. Xian, who received a $1.9 million grant from the National Institute of Diabetes and […]

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News

Greater recurrence of CRC in late-onset vs early onset IBD

Posted: June 27 2020

These findings suggest a difference in colorectal cancer pathophysiology by age, according to the researchers. “Despite longer IBD disease duration at the time of colon or rectal cancer diagnosis, patients with early-onset IBD had significantly more advanced colitis at the time of diagnosis of colon and rectal cancer,” Robert Goldstone, MD, Massachusetts General Hospital general and GI surgeon, […]

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News

‘Important’ microbiome studies offer hope for IBD prediction

Posted: June 26 2020

We may be able to predict disease relapse in patients with chronic inflammatory bowel diseases based on their microbiome markers, according researchers from APC Microbiome Ireland. Read ‘Important’ microbiome studies offer hope for IBD prediction by Nikki Hancocks

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News

Could good oral health be the key to treating inflammatory bowel disease?

Posted: June 26 2020

Some conditions such as cardiovascular disease, respiratory infections, and diabetes are related to poor oral health. Now researchers from the University of Michigan (U-M) Medical and Dental School discovered that inflammatory bowel disease (IBD) that included Crohn’s disease and ulcerative colitis, may be the latest condition made worse by poor oral health. The mouse study […]

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