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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our What’s On page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

Inflammatory bowel disease tied to heart attack risk

Posted: January 2 2019

(Reuters Health) – – People with inflammatory bowel diseases like Crohn’s disease and ulcerative colitis may be up to 12 times more likely to have a heart attack, a U.S. study suggests. Inflammatory bowel disease (IBD) involves chronic or recurring inflammation of the gastrointestinal tract. Ulcerative colitis and Crohn’s are the most common forms. People […]

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News

Photos of ‘Moon Face’ on Social Media

Posted: December 12 2018

“Moon face,” or the round face some people get while using steroids like prednisone, is a common and sometimes difficult side effect of chronic illness. Though opening up about how hard it can be when your face changes shape isn’t always easy, many chronic warriors have taken to Twitter to show off their own moon face […]

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News

Cannabis easing their chronic pain. Now their father is facing jail

Posted: December 12 2018

After years watching his daughters Morgan and Ariel suffer from the chronic auto-immune disease Crohn’s, Stephen Taylor decided to research medical cannabis. “A couple of times there I carried Morgan into hospital weighing around 32 kilograms — actually carrying her in my arms and crying.” Morgan, 21, and Ariel, 25, have both been repeatedly hospitalised […]

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News

Tired of hearing comments about your Weight?

Posted: December 12 2018

Weight is an emotionally charged subject for many people. For those living with Crohn’s disease, it’s an even more difficult topic, as weight loss and gain aren’t always in their control. Between flare-ups, courses of steroids, and sometimes even surgery, fluctuations on the scale are a somewhat inevitable part of living with the condition. One thing that certainly doesn’t help? Judgmental, […]

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News

Can neuro-linguistic programming help you retrain your brain with language?

Posted: December 3 2018

NLP explores the relationships between how we think (neuro), how we communicate (linguistic) and our patterns of behaviour and emotions (programs). Martin Probst, an NLP master practitioner, uses NLP to help people overcome phobias. “The brain blows certain things out of proportion — a trigger is involved and the brain takes over from there. We […]

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Case Study

Ulcerative colitis could be increasing the risk of contracting pulmonary diseases

Posted: December 3 2018

Inflammatory bowel disease (IBD) is thought of as a multi-organ disease with frequent extra-intestinal manifestations. Pulmonary manifestations of IBD are rare, but when they occur, they pose a challenge to definitive diagnosis. If pulmonary involvement occurs while IBD is under control, it is far more difficult to diagnose, primarily because the clinical manifestations are complicated […]

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