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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

What diet is most likely to help ease Crohn’s disease?

Posted: June 17 2021

By Cara Murez The study evaluated one of the commonly used diets for Crohn’s disease, known as the specific carbohydrate diet (SCD), comparing it with the Mediterranean diet, which is sometimes recommended by doctors for its heart health benefits, but not for inflammatory bowel diseases like Crohn’s. The scientists found that both diets reduced symptoms […]

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News

Study finds COVID-19 vaccines safe for IBD patients

Posted: June 15 2021

Patients with inflammatory bowel diseases (IBD) do not appear to have increased risk of side effects from the Pfizer or Moderna COVID-19 vaccines, according to a recent Cedars-Sinai study published online and upcoming in print in the American Journal of Gastroenterology. In fact, those being treated with advanced immune-modifying therapies may experience them less often than the general population. IBDs, […]

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News

‘Good’ bacteria show promise for clinical treatment of Crohn’s disease and ulcerative colitis

Posted: June 7 2021

A new study published in Nature Communications demonstrates that a consortium of bacteria designed to complement missing or underrepresented functions in the imbalanced microbiome of inflammatory bowel disease (IBD) patients, prevented and treated chronic immune-mediated colitis in humanized mouse models. The study’s senior author, Balfour Sartor, MD, Midget Distinguished Professor of Medicine, Microbiology and Immunology, Co-Director of the UNC Multidisciplinary […]

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Personal Story

Embarrassment over illness led to blood transfusions and urgent surgery

Posted: June 3 2021

By James Gould John Davidson’s symptoms became so bad that he was bleeding in the bathroom 20 or so times a day – and now the 24-year-old man has asked people in a similar situation to head for medical advice as soon as they can. John was diagnosed with ulcerative colitis when he was just […]

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News

Riders to dress in purple for Crohn’s

Posted: May 26 2021

The Beginner Show fundraiser on Sunday, 23 May will line up with Crohn’s and Colitis Awareness Month to raise funds for the Crohn’s & Colitis Australia (CCA). The club will be raising awareness for the disease as well as much-needed funds -20 per cent of the show profits and 10 per cent of sales on […]

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