Skip to main content

Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

Back to top

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

Back to top

IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

Back to top

FOR PARENTS, KIDS AND TEENS

Back to top

For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

Back to top

For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

Back to top

You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

Back to top

GP Audit and Education Module

Click here to find out more.

Back to top

The latest news and Research

News

Cure found for rare form of inflammatory bowel disease

Posted: October 18 2020

The disease, called G6PC3 deficiency, affects around one in a million people and causes inflammation of the bowel, as well as lung infections. The team also showed that in affected patients, white blood cells called neutrophils trigger inflammation when exposed to gut bacteria, despite treatment with commonly available biological therapies. The patients were treated at the Royal […]

Read more

News

Team develops wearable sensor to help those with inflammatory bowel disease

Posted: October 12 2020

University of Texas at Dallas researchers have designed a wearable device that monitors sweat for biomarkers that could signal flare-ups of inflammatory bowel disease (IBD). A team of bioengineers demonstrated the wristwatch-like device in a proof-of-concept study funded by the Crohn’s & Colitis Foundation and published online July 28 and in the October print edition […]

Read more

Research

Prevalence of irritable bowel syndrome-type symptoms in patients with inflammatory bowel disease in remission

A systematic review and meta-analysis

Summary Background Patients with inflammatory bowel disease (IBD) often report symptoms compatible with irritable bowel syndrome (IBS), which might have an effect on psychological health. However, previous estimates of the magnitude of this issue have not accounted for ongoing inflammation as the potential cause. We updated a previous systematic review and meta-analysis to determine prevalence […]

Read more

Research

The association between inflammatory potential of diet and disease activity

Results from a cross-sectional study in patients with inflammatory bowel disease

Abstract Background Diet may play a role in disease status in patients with inflammatory bowel disease. We tested whether the inflammatory potential of diet, based on a summation of pro- and anti-inflammatory nutrients, is associated with disease activity in patients with Crohn’s disease and ulcerative colitis. Methods Participants completed a disease activity questionnaire (short Crohn’s […]

Read more

News

What is brain fog and what causes it?

Posted: October 7 2020

Having difficulty concentrating. Feeling confused or forgetful. An inability to focus. Slow thinking or not thinking clearly. A kind of haziness or mental fatigue. Any one of these symptoms can be described as brain fog, says clinical neuropsychologist Caroline Gurvich of Monash University, whose research focuses on cognition and women’s mental health. But although it’s […]

Read more

Research

Cell therapy designed to treat inflammatory bowel disease

The research by the UPV/EHU-University of the Basque Country, in collaboration with Harvard University, has yielded highly encouraging results, and studies in animal models have already begun

The UPV/EHU’s NanoBioCel research group has for many years been developing systems enabling cells to be used as drugs. Cell therapy raises hopes for treating those diseases for which there are as yet no effective pharmacological solutions. Biomaterials, a leading journal in the field of materials sciences and medicine, has just published the paper ‘Multifunctional […]

Read more