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Connect with CCA

Connect with CCA

CCA exists to make life more livable for you and others who have IBD. Our programs and services are designed to help you manage your symptoms, give you relevant information, offer opportunities for you to connect with others in your community, and make you feel supported and less alone.

On this page:

IBD Helpline – 1800 138 029

The IBD Helpline is a free service that offers support, information, advice, and referrals to members and non-members alike. It is staffed by a highly experienced IBD counsellor who provides professional support and advice.

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iConnect

We’re here to help you connect with reliable information and resources to answer any IBD questions. Our registered IBD nurses and highly-trained support crew are available for a confidential online chat should you, a family member or friend, need support.

Visit iconnect.crohnsandcolitis.com.au to connect with our support crew.

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IBD Forums

Our IBD information forums provide much-needed specialised information for people with IBD, as well as their families and carers. Particularly useful for those recently faced with an IBD diagnosis, the forums offer participants latest information, resources, support, and connections with the local community.

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IBD Support Groups

Our support group meetings provide a safe and supportive environment where those affected by IBD—including parents and families—can express themselves openly, and receive support and understanding from others in similar situations.

Visit our Support page to start finding a group nearest you.

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Youth Camps

Many adolescents with IBD feel isolated from their peers and are at risk of depression and anxiety. Our youth camps bring together teenagers living with IBD for three days of fun, adventure, and activities. We give them a chance to be with peers who share similar experiences. While some are reluctant at the start, by the end of the three days, nearly all of them leave with new friends and a renewed sense of self.

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Awareness

Increasing community awareness about IBD and about our work at a local and national level is vital to achieving our mission.

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IBD in the media

A key strategy for raising awareness has been through sharing positive news stories in newspapers, on television, on radio, and on the Internet. In recent years, we have been attracting growing media coverage. As more and more Australians become increasingly aware of IBD, the barriers to open communication will diminish, and it will become easier to talk about the condition without embarrassment or fear of stigma.

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Can’t Wait Program

If you’ve been diagnosed with Crohn’s disease or ulcerative colitis, as a CCA member you are entitled to CCA’s Can’t Wait Card. This valuable card offers you access to toilet facilities of participating businesses. Equally important, it educates businesses about IBD and its effects on those who have it, and gives them an opportunity to help.

A complete list of all of our Can’t Wait Program affiliates is available online at www.cantwait.net.au.

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IBD Quality of Care Program

As part of our mission of improving the lives of those with ulcerative colitis and Crohn’s disease, in 2013 we commissioned PricewaterhouseCoopers Australia (PwC) to update existing IBD national health economic and prevalence data. This report, Improving Inflammatory Bowel Disease Care Across Australia, identified significant geographical variations in access to quality care, and found that the current model of care was inequitable. It recommended that CCA seek funding to assess existing services in hospitals across Australia. In 2014, we obtained federal government funding as well as the endorsement of the peak learned bodies representing key health stakeholders to develop National Standards of Care, and to perform a national IBD Audit. The aim of this two-year project was to improve IBD care for patients in Australia by:

  • Examining the provision and organisation of IBD care throughout Australia; and
  • Providing an evidence-based case for increased IBD resources that is consistent with national needs, is supported by the key stakeholder groups, and aligns with government policy objectives. The final report was published in 2016.

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Fundraising

Our work would not be possible without the generous support of donors, members, and businesses. We hold a variety of Crohn’s disease fundraising events every year, focused on raising awareness and improving the lives of those living with this invisible disease.

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Donations

We accept donations year-round, and we use the funds to deliver services to the community. Charitable donations can be made online through our website. All donations over $2 are tax-deductible.

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Changing Lives Challenge

Run, swim, or ride for CCA! Join CCA’s Changing Lives Challenge and get fit while doing it. The funds raised go towards our youth camps, information forums, support groups, online services, and Can’t Wait Program.

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Workplace Giving

Workplace giving is a simple and effective way for employees to donate regularly to CCA. It is voluntary and simply involves employees nominating CCA as their charity and specifying a monthly amount to be donated through their payroll system. This can be just a couple of dollars to several hundreds per month.

CCA is a registered charity with the Charities Aid Foundation’s Workplace Giving program.

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Regular giving

Regular giving is an easy way to support us on an ongoing basis. Each month, your nominated amount is automatically debited from your credit card.

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In memoriam

While the loss of a loved one is a sad occasion, it is also an opportunity to give hope to thousands of Australians who are living with chronic conditions, including IBD. Families can request that donations be made to CCA in lieu of flowers.

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Bequests

Leaving a gift in your will to Crohn’s & Colitis Australia will help us make a positive difference to people with Crohn’s disease and ulcerative colitis, their family, friends and carers. For more information on fundraising, please visit our website, e-mail us at info@crohnsandcolitis.com.au or phone us at 1800 138 029.

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The latest news and Research

Personal Story

I Became a model after having my colon removed

Posted: May 13 2021

By Gaylyn Henderson, as told to Sarah Z. Wexler My road to a Crohn’s diagnosis started when I was 13. I had always wanted to model, but I was sick so often—experiencing chronic loose stool and using the bathroom often—that I didn’t think it was a possibility for me. My pediatrician immediately referred me to […]

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News

‘It’s affected my life in many different ways’

Posted: May 10 2021

By 2022, it’s expected that more than 100,000 people will be living with Crohn’s disease and ulcerative colitis in Australia, according to Crohn’s & Colitis Australia (CCA). As the rate of these inflammatory bowel diseases (IBD) continue to rise, CCA is urging people to share what it’s like to live with these life-long illnesses as […]

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News

PBS listing for Australians with a rare epilepsy condition and ulcerative colitis

Posted: May 10 2021

In a historic first, Australians living with a rare form of epilepsy will have access to a medicinal cannabis drug, which is being listed on Australia’s Pharmaceutical Benefits Scheme (PBS) for the first time. From 1 May 2021, Australians living with Dravet syndrome, will have access to Epidyolex® (cannabidiol), a new treatment used in combination with […]

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Blog

5 Common mistakes that can make ulcerative colitis worse

Posted: May 10 2021

By Meghan Rabbitt When you live with ulcerative colitis (UC), you know that symptoms can return even if you’ve been in remission—and even if you’re doing everything you can to avoid a flare. Yet there are a number of missteps you might not even realize you’re making that can worsen your condition, says Matilda Hagan, M.D., co-director for […]

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Research

Diet–microbiota interactions in inflammatory bowel disease

Accumulating evidence suggests that the gut microbiota plays pivotal roles in the regulation of intestinal homeostasis and IBD pathogenesis.

By Kohei Sugihara and Nobuhiko Kamada  Inflammatory bowel disease (IBD), which includes ulcerative colitis (UC) and Crohn’s disease (CD), is a chronic and relapsing inflammatory disorder of the gastrointestinal tract. The prevalence of IBD has been increasing worldwide, affecting about 3 million people in the United States and 2.5 million people in Europe. Although the precise etiology […]

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News

Advancing research of inflammatory intestinal diseases

Posted: May 10 2021

By Anna MacDonald To help advance research of inflammatory intestinal diseases, Emulate recently launched the Colon Intestine-Chip, a comprehensive model that incorporates human colonic organoids and supportive colonic endothelial cells. We spoke to Dr Lorna Ewart, Emulate’s executive vice president of science, to learn more about the limitations of traditional inflammatory intestinal disease models, what makes the […]

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