News
‘I couldn’t go on the way I was’
She’s the ABC radio host who is adept at drawing out others’ stories, but in a new memoir, Jacinta Parsons details her own, often harrowing, struggle with Crohn’s disease. Although she’s long been in the public eye, Parsons says that initially she felt sick about airing such personal matters in the book, called Unseen: The Secret […]
News
Jacinta Parsons on living with chronic illness ‘I couldn’t feel my body properly’
Like many chronically ill people, Jacinta Parsons was terrified of appearing to be sick. She could date it back to being a three-year-old, when her appendix ruptured. Already her fear of hospitals loomed as large: as doctors pressed down on her pelvis she convinced them there was no pain. Then, at five, the vulnerability of […]
Personal Story
Living with IBD
Video Link Bryony Hopkins has lived with Crohn’s Disease since she was a child. In this film she meets others living with IBD, including Anthony Andrews who is being admitted into hospital for a life-changing operation and reality TV star Louise Thompson. Bryony meets scientists exploring the connect between the brain and the gut, and […]
Personal Story
What it’s like to live with: ulcerative colitis
Read What it’s like to live with: ulcerative colitis by Anubhuti Matta. In August 2017, when I was 27, I was in Boston and my stomach started aching a lot. I thought it was acidity because I’ve always had stomach issues. But in September, I went to the loo and saw that there was a lot of […]
Personal Story
YouTuber Hannah Witton on ulcerative colitis, stoma bags, and speaking out
Hannah Witton isn’t one of those people. A sex and relationships YouTuber who is no stranger to the taboo, when her Inflammatory Bowel Disease (IBD) came back, Hannah decided that she wanted to talk about it. So she did – and millions listened. Hannah was just seven-years-old when she was first diagnosed with ulcerative colitis. […]
Personal Story
Thinking about surgery for Crohn’s disease?
Amber Wallace never thought she’d speak publicly about her ostomy surgery. When it happened, she planned on keeping it a secret until she could hopefully have it reversed. “I thought it was going to be something I was ashamed of and would never want to talk to people about,” she admits. It was only when […]
Personal Story
Why I put my Crohn’s on film
In order to raise awareness of Crohn’s disease, 17-year-old Matty Fisher from Mill Hill has made a short film, Life Goes On, documenting his own struggle with the debilitating disease. He was just 14 when he started experiencing symptoms, and soon received the diagnosis. Crohn’s is a type of inflammatory bowel disease (IBD), characterised by the […]
Personal Story
Stopping the stigma and normalising the stoma
A young woman in regional South Australia is trying to change the conversation around bowel disease in her local community, after being diagnosed with Ulcerative Colitis. Riverland resident Aleysha Lange said she was a regular 20-year-old who enjoyed playing netball, reading, hanging out with friends and going to work. But since her bowel disease diagnosis […]
Personal Story
Kathleen Baker didn’t let Crohn’s block her olympic dream – now she’s ready for another
When swimmer Kathleen Baker started shedding pounds at the age of 12, she knew something wasn’t right, but was hesitant to admit it. She was already an elite athlete at that point with not much weight to lose. “I ran fevers for weeks and weeks on end,” Baker said, “I had pretty much every gastrointestinal […]
News
You’ve given UC your best. Is it time for surgery?
Everyone has their limit, and for Kacy Holloway, she reached it after five years of unrelenting and exhausting symptoms of ulcerative colitis (UC). “I had been on every medication approved for UC and had even gone through a clinical trial and failed,” says Holloway, 22, who lives in Waco, TX. “I was missing school and […]
Latest Articles
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NewsNew potential therapy for Crohn’s disease in children
Anti-inflammatory nanotherapy produced promising results in a rodent model -
Personal Story‘After my inflammatory bowel disease diagnosis, no one could’ve prepared me for life as a sick mom
Brooke Abbott created IBD Moms to provide support and community for women in her shoes. -
BlogI’m a nutritionist with IBD. These are my 5 favorite foods for gut health
The million-dollar question with inflammatory bowel disease (IBD): “What should I eat?”
