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Personal Story

Personal Story

What it’s really like having a disability no one can see

Posted: March 20 2020

My name is Billie and I live with a chronic invisible illness and disability. I was diagnosed with Ulcerative Colitis (UC) at the age of 20. UC is a gut condition that effects the large intestine; causing bleeding, inflammation and ulcers along the colon. Ulcerative Colitis is also under the umbrella term ‘Inflammatory Bowel Disease (IBD)’ and […]

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Personal Story

Embracing life with an ileostomy bag

Posted: March 14 2020

Melissa Dow will never forget the night when she woke up with excruciating pain in her upper abdomen. Initially, doctors told her she had pancreatitis — and a form of an inflammatory bowel disease known as ulcerative colitis. She spent three years on steroids and other medications to help control the inflammation in her colon. […]

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News

Coronavirus panic shopping means some have months’ worth of toilet paper while others can’t get basic supplies

Posted: March 10 2020

But then she went to her local supermarket in Bendigo, in central Victoria, and saw empty shelves without any toilet paper, rice, pasta, sanitary pads or painkillers. Ms Kent said the issue of people stocking up on large amounts of essential supplies, is most affecting families like her own, on strict budgets. “I have a […]

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Telling my boss about my invisible condition

Posted: February 27 2020

In 1998, during my last year of high school, I began going to the bathroom up to 12 times a day. My weight dropped quickly—five pounds, then 20—and I felt tired, had diarrhea constantly, and my stomach was always killing me. Both my mom and my doctor thought this was a reaction to the stress […]

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Personal Story

I’ve been battling chronic illness for years.

Posted: February 6 2020

I’m a sick person. I go to the doctor a lot. I’m not shy about things that I need, or when something doesn’t feel right, and I usually have the language to articulate what I think is going on. I’m almost forty years old! Yet one of the things that is most baffling to me […]

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Personal Story

Crohn’s disease dragged my body to a point where it barely functioned

Posted: January 23 2020

Today, I am healthier than I have been in a long time. But even so, this summer break alone has seen me in hospital twice to have abscesses removed, an outpatient flexible sigmoidoscopy​, which is an exam to evaluate the lower part of the large intestine, and an MRI. The days are dwindling until the first […]

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Personal Story

Living with ulcerative colitis: turning Points

Posted: January 21 2020

Watch the following stories here. Patient turned Counselor Six months into her marriage, Jennifer Martin’s new life started to fall apart. She began having serious digestive problems. She had been diagnosed with ulcerative colitis, but this was worse than anything she had ever experienced. A Life-Changing Race It took Mary Beth Szydlowski a long time […]

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Personal Story

I tried 22 different medications before an electrical implant healed my Crohn’s disease

Posted: January 15 2020

When I was in the eighth grade, my life changed forever. I was tap dancing during a play rehearsal and twisted my ankle. It sounds pretty innocuous, right? But what followed was a big shock. At first, the swelling in my ankle seemed normal. After a few weeks my ankle was just as swollen as […]

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Personal Story

‘People think when you have inflammatory bowel disease that you just go to the toilet a lot, but it’s more than that…’

Posted: December 5 2019

I was actually diagnosed during Crohn’s and Colitis Awareness Week two years ago, which was a bit of a coincidence. It just came out of nowhere – I had been pregnant with my second baby and there were some things during the pregnancy that I suppose were a sign that something was going on, but […]

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Personal Story

‘It’s humiliating when someone tuts at you for using a disabled loo’

Posted: December 5 2019

Two years after his diagnosis, Mesha decided to have an operation to have a stoma created, where an ileostomy bag is attached. This means that his body now bypasses the large intestine and the waste is collected in the bag that sits outside his body. Now, he works as a personal trainer and when his […]

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