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Personal Story

Personal Story

“They told me candies, milkshakes, and pizza were all fine”

Posted: November 14 2019

Scott Lippman was on a vacation with his wife in Central America in 2013 when he suddenly got sick. “We were nervous about it, so we cut the trip short,” says Lippman. Back home in New York, though, he wasn’t getting better. In fact, little by little, he was getting worse. “I was losing weight. […]

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Personal Story

How to become a loud, proud advocate for people with ulcerative colitis

Posted: November 14 2019

When I was diagnosed with ulcerative colitis (UC) in 2012, I sensed my life was going to change drastically — and not just because of the everyday work of managing my symptoms. My feelings were confirmed when I was admitted for my first long hospital stay, during which I learned I had pancolitis, a form […]

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Personal Story

Lemonade stand helps fight Cronh’s disease

Posted: November 12 2019

On the Friday before Labor Day, a quiet side street in Canton, Massachusetts, is buzzing with activity. Cars line both sides of the street, and kids ride their bikes back and forth. Local firetrucks and police cars sound their alarms in celebration. In fact, it seems the entire town of Canton has descended upon the […]

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Personal Story

Imagine Dragons’ frontman lives with two chronic diseases

Posted: October 31 2019

Imagine Dragons is as American pop-rock bank from Las Vegas, known for their hit songs “Radioactive,” “Thunder,” and “Believer.” Their lead vocalist, Dan Reynolds, surprised fans in 2015 by announcing that he has been diagnosed with two medical conditions. He was diagnosed with ulcerative colitis (UC) at the age of 21, and ankylosing spondylitis at 24. He […]

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News

Victorian bowel cancer patient charged with cultivating cannabis

Posted: October 24 2019

Alice Burns said a lack of affordable medicinal cannabis led to her decision to grow her own cannabis, which she then used to make cannabis oil. The 54-year-old was arrested and charged in June, after a police tip-off led to a search of her home in regional Victoria’s Otway Ranges. “The local policeman knew that […]

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Personal Story

You don’t look sick: ‘Crohn’s is more than just trips to the toilet’

Posted: October 24 2019

Rebecca was first diagnosed in December 2014. The yoga teacher and restaurant supervisor from Southend-on-Sea, Essex, was going to the toilet more, suffering from stomach ache and was losing weight. A blood test also showed that she was anaemic (low iron levels) and her GP suspected Crohn’s disease. She was referred for a colonoscopy, where […]

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Personal Story

Crohn’s, uncertainty and comfort

Posted: October 24 2019

I have always considered my earliest memories of suffering from Crohn’s Disease to be somewhat strange. Their peculiarity does not arise from the specifics of what happened. In fact, they mostly involve quotidian family interactions that most people would easily forget. What perplexes me about them is how little they actually have to do with […]

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Personal Story

Raising awareness of Crohn’s disease

Posted: October 17 2019

I recently met a mum who wanted to share her story with me. As I sat opposite her in the coffee shop I could feel her pain, even though she was smiling and had a twinkle in her eye. As well as feeling her pain, I could feel her passion too. She was telling me […]

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Personal Story

Boy raises money to give young Crohn’s sufferers a less painful option

Posted: October 17 2019

Every six months, Cohen Martyniuk braces himself for a three-day ritual of pain that comes before he gets a colonoscopy to check on his Crohn’s disease. “I have to stay home, because what they do is give you a laxative and you basically go to the washroom and you sit there all day, and it’s […]

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Personal Story

Why It’s Okay to Grieve the Loss of Your Colon

Posted: September 25 2019

When you’re diagnosed with a chronic illness like ulcerative colitis (UC), it’s important to be in touch with not only your body and how you feel physically but also how you are coping mentally. Before my diagnosis, I had never heard of inflammatory bowel disease. But at the age of 22, I began experiencing sharp stomach […]

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