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Personal Story

Personal Story

Crohn’s patient ‘vomits 30 times a day’ and has cardiac arrests

Posted: September 30 2020

Jessica Elliott, 25, suffers from an extreme form of Crohn’s disease meaning she vomits dozens of times a day. In this year alone she has had three cardiac arrests and had to be revived using a defibrillator. Her family have launched an appeal to raise money for a pioneering operation and have so far raised […]

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‘I couldn’t go on the way I was’

Posted: September 28 2020

She’s the ABC radio host who is adept at drawing out others’ stories, but in a new memoir, Jacinta Parsons details her own, often harrowing, struggle with Crohn’s disease. Although she’s long been in the public eye, Parsons says that initially she felt sick about airing such personal matters in the book, called Unseen: The Secret […]

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Jacinta Parsons on living with chronic illness ‘I couldn’t feel my body properly’

Posted: September 28 2020

Like many chronically ill people, Jacinta Parsons was terrified of appearing to be sick. She could date it back to being a three-year-old, when her appendix ruptured. Already her fear of hospitals loomed as large: as doctors pressed down on her pelvis she convinced them there was no pain. Then, at five, the vulnerability of […]

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Personal Story

Living with IBD

Posted: September 22 2020

Video Link Bryony Hopkins has lived with Crohn’s Disease since she was a child. In this film she meets others living with IBD, including Anthony Andrews who is being admitted into hospital for a life-changing operation and reality TV star Louise Thompson. Bryony meets scientists exploring the connect between the brain and the gut, and […]

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What it’s like to live with: ulcerative colitis

Posted: July 23 2020

Read What it’s like to live with: ulcerative colitis by Anubhuti Matta. In August 2017, when I was 27, I was in Boston and my stomach started aching a lot. I thought it was acidity because I’ve always had stomach issues. But in September, I went to the loo and saw that there was a lot of […]

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YouTuber Hannah Witton on ulcerative colitis, stoma bags, and speaking out

Posted: July 16 2020

Hannah Witton isn’t one of those people. A sex and relationships YouTuber who is no stranger to the taboo, when her Inflammatory Bowel Disease (IBD) came back, Hannah decided that she wanted to talk about it. So she did – and millions listened. Hannah was just seven-years-old when she was first diagnosed with ulcerative colitis. […]

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Thinking about surgery for Crohn’s disease?

Posted: June 15 2020

Amber Wallace never thought she’d speak publicly about her ostomy surgery. When it happened, she planned on keeping it a secret until she could hopefully have it reversed. “I thought it was going to be something I was ashamed of and would never want to talk to people about,” she admits. It was only when […]

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Why I put my Crohn’s on film

Posted: June 4 2020

In order to raise awareness of Crohn’s disease, 17-year-old Matty Fisher from Mill Hill has made a short film, Life Goes On, documenting his own struggle with the debilitating disease. He was just 14 when he started experiencing symptoms, and soon received the diagnosis. Crohn’s is a type of inflammatory bowel disease (IBD), characterised by the […]

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Stopping the stigma and normalising the stoma

Posted: June 3 2020

A young woman in regional South Australia is trying to change the conversation around bowel disease in her local community, after being diagnosed with Ulcerative Colitis. Riverland resident Aleysha Lange said she was a regular 20-year-old who enjoyed playing netball, reading, hanging out with friends and going to work. But since her bowel disease diagnosis […]

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Kathleen Baker didn’t let Crohn’s block her olympic dream – now she’s ready for another

Posted: May 28 2020

When swimmer Kathleen Baker started shedding pounds at the age of 12, she knew something wasn’t right, but was hesitant to admit it. She was already an elite athlete at that point with not much weight to lose. “I ran fevers for weeks and weeks on end,” Baker said, “I had pretty much every gastrointestinal […]

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