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Tips for surviving your first PillCam

Posted: January 25 2021

By Jenna Farmer Although inflammatory bowel disease (IBD) isn’t a new condition, the scientific developments surrounding it are constantly changing. Along with new treatments, new procedures have also been created to help with the diagnostic and monitoring process of IBD patients. One of these is a PillCam, a nifty piece of technology that’s particularly useful for those […]

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Personal Story

‘Invisible and isolating’: Lauren Beasley’s battle with Crohn’s disease

Posted: December 14 2020

The Silver Sands resident has been locked in a fight with the inflammatory bowel disease for the past two years, and as she describes, it has all but brought her life to a standstill. In that time she’s gone from energetic retail worker to unemployed and often bedridden, with both the financial and physical impacts […]

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Personal Story

My chronic illness was only taken seriously when it made me thin

Posted: December 14 2020

By Hattie Gladwell “You look so poorly, you poor thing,” friends and relatives would say as a concerned look spread across their faces. I was 19 and had just been diagnosed with ulcerative colitis, a form of inflammatory bowel disease. I’d been underweight for years and the disease became so severe that it perforated my bowel. Because […]

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Personal Story

Teen’s Crohn’s treatment helps her keep playing music

Posted: December 1 2020

For Abigail Tucker, it started with migraines and stomach pains. Then she started losing weight — as much as 50 pounds. She said her condition worsened to the point that, when she was 13, she felt like withdrawing from friends and skipping activities such as playing or teaching piano. Soon she was often missing a […]

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Personal Story

Why I’m striving to change the healthcare experience for black and brown people with IBD

Posted: December 1 2020

I was really tired. I thought I could stop the bleeding like I had in the past — eat more kale. Yes, I thought it was that simple. In the past, when I noticed bleeding from my rectum, I would go on a heavily green diet and the bleeding would go away. As a child, […]

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Blog

Having a chronic illness helped me prepare for the uncertainty of the pandemic

Posted: November 23 2020

By Bridget Shirvell.  Chortling filled the air as my 1-year-old ran towards the water, only to be scooped up by her uncle on the nearly empty beach in Pacifica, California. It was the day after Christmas, and she’d been running around the beach for at least half an hour with my brother and sister. The […]

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News

How online support groups can help during an IBD flare-up

Posted: November 4 2020

Meeting my best friend Not only did I get support for living with IBD, but I met two of my best friends through online support groups. I’d spotted my now best friend, Danielle, posting frequently on the group for under 30s. She was just a year older than me and seemed very similar to me […]

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Personal Story

Hannah Witton: ulcerative colitis podcast

Posted: October 26 2020

In this debut episode of Chronic, Lucy Pasha-Robinson is joined by sex educator and YouTube star Hannah Witton, who lives with ulcerative colitis. We dive head first into that enduring question that drives so many of us living with chronic illness round the bend – why are people so keen to offer up unsolicited advice […]

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Personal Story

Crohn’s patient ‘vomits 30 times a day’ and has cardiac arrests

Posted: September 30 2020

Jessica Elliott, 25, suffers from an extreme form of Crohn’s disease meaning she vomits dozens of times a day. In this year alone she has had three cardiac arrests and had to be revived using a defibrillator. Her family have launched an appeal to raise money for a pioneering operation and have so far raised […]

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News

‘I couldn’t go on the way I was’

Posted: September 28 2020

She’s the ABC radio host who is adept at drawing out others’ stories, but in a new memoir, Jacinta Parsons details her own, often harrowing, struggle with Crohn’s disease. Although she’s long been in the public eye, Parsons says that initially she felt sick about airing such personal matters in the book, called Unseen: The Secret […]

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