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Kids & Teens

News

Cure found for rare form of inflammatory bowel disease

Posted: October 18 2020

The disease, called G6PC3 deficiency, affects around one in a million people and causes inflammation of the bowel, as well as lung infections. The team also showed that in affected patients, white blood cells called neutrophils trigger inflammation when exposed to gut bacteria, despite treatment with commonly available biological therapies. The patients were treated at the Royal […]

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Research

The psychosocial burden of inflammatory bowel disease in adolescents and young adults

This study examined the psychosocial burden of inflammatory bowel disease (IBD) in young people aged 15‐25 years attending a tertiary specialist health centre for adolescents and young adults in Brisbane.

Methods Young people with IBD provided demographic information and psychosocial data via a cross‐sectional self‐report survey. Psychosocial data included the Kessler Psychological Distress Scale (K‐10), Perceived Stress Scale (PSS‐10), Brief Illness Perception Questionnaire (Brief IPQ), World Health Organisation Wellbeing Index (WHO‐5), Pediatric Quality of Life Inventory (PedsQL), Short Quality of Life Questionnaire for IBD (SIBDQ), […]

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News

“I don’t want my friends to know”

Posted: September 7 2020

Read ‘I don’t want my friends to know’ – young people on growing up with Crohn’s or colitis by Bernie Carter, Alison Rouncefield-Swales and Pamela Qualter. Young people with chronic health conditions cope with all of the usual challenges of growing up – making friends, changing schools, adapting to new situations, developing a sense of self, and dealing with interpersonal conflict. […]

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News

5 major advances in inflammatory bowel disease (IBD) treatment

Posted: January 30 2020

Lymphoma not associated with anti-TNF therapy in pediatric IBD patients Anti-tumor necrosis factor (aTNF) drugs are among the most effective medications used to treat pediatric IBD. Despite their effectiveness, concerns regarding an association with lymphoma limit their use in everyday practice. Based on a large, geographically diverse administrative insurance claims database of 9,284 pediatric IBD […]

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News

Specialised immune cells could help repair inflammatory bowel disease damage in children

Posted: December 17 2019

“This study offers new hope for kids with IBD who urgently need new treatments by showing that Tr1 cells have the potential to reverse the damage caused by IBD,” said senior author Dr. Megan Levings, an investigator and head of the Childhood Disease Research Theme at BC Children’s and a professor in UBC’s department of […]

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News

Exposure to TNF inhibitors increases psoriasis risk in children with IBD, JIA

Posted: November 28 2019

The single-center study of electronic health record data from 2008 to 2018 included 4,403 children under 19 years at diagnosis, each with at least two ICD-9 or ICD-10 codes for JIA, IBD or chronic noninfectious osteomyelitis and at least two visits with a study center rheumatologist or gastroenterologist. Researchers defined TNF inhibitor exposure as at least […]

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Personal Story

Lemonade stand helps fight Cronh’s disease

Posted: November 12 2019

On the Friday before Labor Day, a quiet side street in Canton, Massachusetts, is buzzing with activity. Cars line both sides of the street, and kids ride their bikes back and forth. Local firetrucks and police cars sound their alarms in celebration. In fact, it seems the entire town of Canton has descended upon the […]

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News

Fetal gut has more well-developed immune capabilities than previously thought

Posted: October 17 2019

Liza Konnikova and her colleagues applied advanced cellular and genomic analyses to study the makeup of the immune system in gut tissues from 14- to 23-week-old fetuses and infants undergoing surgery to correct gut defects. “We were surprised to find that almost complete immune capacity in the gut had developed as early as 14 weeks, […]

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Personal Story

Raising awareness of Crohn’s disease

Posted: October 17 2019

I recently met a mum who wanted to share her story with me. As I sat opposite her in the coffee shop I could feel her pain, even though she was smiling and had a twinkle in her eye. As well as feeling her pain, I could feel her passion too. She was telling me […]

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Personal Story

Boy raises money to give young Crohn’s sufferers a less painful option

Posted: October 17 2019

Every six months, Cohen Martyniuk braces himself for a three-day ritual of pain that comes before he gets a colonoscopy to check on his Crohn’s disease. “I have to stay home, because what they do is give you a laxative and you basically go to the washroom and you sit there all day, and it’s […]

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