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Hidden battle: Raising awareness of a disease no one wants to talk about


Former Bletchington public school teacher Helen Moon said she was diagnosed with ulcerative colitis. Mrs Moon said her life had become calculated as she needed to know how close she was to home and facilities in case of a flare-up of the condition.

One in 250 Australians are sufferers of a disease that has no cure, is increasingly prevalent, is most commonly diagnosed in young people and yet is barely spoken about.

May is the awareness month for Crohn’s disease and ulcerative colitis which are collectively known as inflammatory bowel disease (IBD).

Crohn’s and Colitis Australia (CCA) is hoping the month will raise public understanding and reduce sufferers’ isolation.

Former Bletchington public school teacher Helen Moon said she was diagnosed with ulcerative colitis.

“When I was first diagnosed you don’t know where to go,” she said.

She said initially she felt fine but, “at the end of 2016 things started to go very wrong.”

Mrs Moon said her life had become calculated as she needed to know how close she was to home and facilities in case of a flare-up of the condition.

“You are pretty home bound, it excludes you from a lot of situations because of your illness,” she said.

“It can be embarrassing, you don’t want to talk about it too much, it is very debilitating.

Read the full article on Central Western Daily:  https://www.centralwesterndaily.com.au/story/5365615/hidden-battle-raising-awareness-of-a-disease-no-one-wants-to-talk-about/?cs=103

Posted on: May 1 2018

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Good article. I certainly appreciate this site. Continue the good work!

I was very interested in the article "Good Vs bad bacteria - the bugs responsible for Crohn's disease". I was diagnosed with IBD 6 months ago and after a very bad reaction to Pentasa (but unproven) I was told to wait and try again when the symptoms peaked again. However, I started taking Probiotics each day and (touch wood) I have been in remission for 5 months, with high hopes. I am very interested in the research in this field.

My 16 year old daughter was diagnosed with UC in July 2016 and after 4 flare ups within 12 months and trying different medications, she was prescribed infliximab. This has been the miracle medication for her and am so thankful that she has been able to return to a "relatively normal life", enjoying school and her passion for sports again (bar 8 weekly visits to PMH for inflixmab infusions, routine colonoscopies and mezzaline daily). I had very little knowledge of UC and autoimmunie disease for that matter; and was shellshocked at how debilitating it can be. We are so grateful to have a wonderful gastro and medical team supporting my daughter and of course the impact that inflixmab has had; however know it is still early days and don't want to take anything for granted.


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