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Hidden battle: Raising awareness of a disease no one wants to talk about


Former Bletchington public school teacher Helen Moon said she was diagnosed with ulcerative colitis. Mrs Moon said her life had become calculated as she needed to know how close she was to home and facilities in case of a flare-up of the condition.

One in 250 Australians are sufferers of a disease that has no cure, is increasingly prevalent, is most commonly diagnosed in young people and yet is barely spoken about.

May is the awareness month for Crohn’s disease and ulcerative colitis which are collectively known as inflammatory bowel disease (IBD).

Crohn’s and Colitis Australia (CCA) is hoping the month will raise public understanding and reduce sufferers’ isolation.

Former Bletchington public school teacher Helen Moon said she was diagnosed with ulcerative colitis.

“When I was first diagnosed you don’t know where to go,” she said.

She said initially she felt fine but, “at the end of 2016 things started to go very wrong.”

Mrs Moon said her life had become calculated as she needed to know how close she was to home and facilities in case of a flare-up of the condition.

“You are pretty home bound, it excludes you from a lot of situations because of your illness,” she said.

“It can be embarrassing, you don’t want to talk about it too much, it is very debilitating.

Read the full article on Central Western Daily:  https://www.centralwesterndaily.com.au/story/5365615/hidden-battle-raising-awareness-of-a-disease-no-one-wants-to-talk-about/?cs=103

Posted on: May 1 2018

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