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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

Common mistakes that can make ulcerative colitis worse

Posted: October 22 2019

When you experience an ulcerative colitis flare, it’s easy to assign blame, be it on last night’s spicy dinner or on that extra-large coffee. In actuality, flares are unpredictable — there are no proven triggers or foolproof ways to prevent them. The most important thing to do if you have ulcerative colitis? “Take your medications as prescribed […]

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News

Healthiest gut bacteria with plant-based or Mediterranean diet

Posted: October 21 2019

The study included four different groups of people: the population at large; people suffering from the chronic intestinal inflammatory disorder called Crohn’s disease; people with another similar gut disorder called ulcerative colitis; and people with irritable bowel syndrome (IBS). This helped them describe the individual’s microbial pattern. This was then correlated with the results of […]

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News

Fetal gut has more well-developed immune capabilities than previously thought

Posted: October 17 2019

Liza Konnikova and her colleagues applied advanced cellular and genomic analyses to study the makeup of the immune system in gut tissues from 14- to 23-week-old fetuses and infants undergoing surgery to correct gut defects. “We were surprised to find that almost complete immune capacity in the gut had developed as early as 14 weeks, […]

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Personal Story

Raising awareness of Crohn’s disease

Posted: October 17 2019

I recently met a mum who wanted to share her story with me. As I sat opposite her in the coffee shop I could feel her pain, even though she was smiling and had a twinkle in her eye. As well as feeling her pain, I could feel her passion too. She was telling me […]

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Personal Story

Boy raises money to give young Crohn’s sufferers a less painful option

Posted: October 17 2019

Every six months, Cohen Martyniuk braces himself for a three-day ritual of pain that comes before he gets a colonoscopy to check on his Crohn’s disease. “I have to stay home, because what they do is give you a laxative and you basically go to the washroom and you sit there all day, and it’s […]

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News

Health Benefits of Practicing Gratitude According to Science

Posted: October 15 2019

The health benefits of expressing gratitude are many, and some might surprise you. Scholars, spiritual leaders, and scientist throughout history have deliberated on gratitude. More recently, the scientifically-validated benefits of gratitude are better understood. Regardless of who you are, or the circumstances of your life, the health benefits of gratitude are undeniable. There are numerous gratitude […]

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