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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

IBD is misunderstood

Posted: January 16 2020

Although a 2017 review forecasted that there will be about 2.2 million Americans and about 0.5% of Western Europeans living with IBD in 2025, other reports suggested that the disease is not universally understood. “There are a lot of misunderstandings about IBD,” Paul Feuerstadt MD, FACG, AGAF said. For example, a survey of 409 general practitioners in […]

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News

Diet as therapy for IBD remains hindered by knowledge gaps

Posted: January 16 2020

As patients with Crohn’s disease seek guidance on how to handle their condition, there remains a knowledge gap regarding what, if any, specific dietary recommendations could become a mainstay therapy, according to a presentation at Advances in Inflammatory Bowel Disease 2019. “We don’t have enough definitive research to say that one diet is the right answer for […]

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Research

Infants born to mothers with IBD present with altered gut microbiome

Prenatal and early life bacterial colonisation is thought to play a major role in shaping the immune system.

IBDs, comprising Crohn’s disease (CD) and UC, result from aberrant mucosal immune responses to bacteria in genetically susceptible individuals.1 2 While family history is the strongest risk factor for developing IBD, the genetic loci associated with risk do not fully explain disease heritability.1 IBD affects women during their reproductive years and 25% become pregnant after diagnosis. […]

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Research

Tailoring treatment withdrawal in inflammatory bowel disease

Patients may not relapse over mid-term and those who have relapsed may have benefited from a drug-free period before being treated again.

There is currently no cure for inflammatory bowel disease. Most recent treatments and treatment strategies allow for healing intestinal lesions and maintaining steroid-free remission in a subset of patients. These patients and their doctors often ask themselves whether the treatment could be withdrawn. Several studies in both Crohn’s disease and ulcerative colitis have demonstrated a […]

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Personal Story

I tried 22 different medications before an electrical implant healed my Crohn’s disease

Posted: January 15 2020

When I was in the eighth grade, my life changed forever. I was tap dancing during a play rehearsal and twisted my ankle. It sounds pretty innocuous, right? But what followed was a big shock. At first, the swelling in my ankle seemed normal. After a few weeks my ankle was just as swollen as […]

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News

What to know about Crohn’s and the eyes

Posted: January 9 2020

Common symptoms of Crohn’s disease include cramps, diarrhea, and bloody stool. However, Crohn’s disease can also cause symptoms outside the digestive tract. These include skin complications, problems with joints, and eye disorders. About 10% of people with Crohn’s disease have eye-related symptoms or conditions. Due to the sensitivity of the tissues in the eye, symptoms may occur in this […]

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