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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our What’s On page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

10 tips to feel better during flare-Ups

Posted: November 4 2018

You’ve had weeks on end symptom free, but you know it can’t stay this way forever. As people living with Crohn’s disease, we are often waiting for the other shoe to drop. When will Crohn’s rear its ugly head once again? Flares are a frustrating, unfortunate reality with Crohn’s. To help you the next time […]

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News

Crohn’s disease can’t stop Shane

Posted: October 22 2018

A Bunbury father is shaking off any ignominy around a disease many are reluctant to speak out about with an ultimate goal of finding a cure. Shane Maher was diagnosed with Crohn’s disease at the age of 26. “My life is different, I have to be mindful at all times of my condition,” the now […]

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News

Nobel Prize in Chemistry awarded for using evolution to develop adalimumab (Humira)

Posted: October 8 2018

Scientists Frances Arnold, George Smith and Sir Gregory Winter have won the 2018 Nobel Prize in Chemistry for research using directed evolution to produce enzymes for new chemicals and pharmaceuticals, the award-giving body says. “This year’s Nobel Laureates in chemistry have been inspired by the power of evolution and used the same principles — genetic […]

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News

Breastfeeding can limit Crohn’s progression in children

Posted: October 8 2018

Children with Crohn’s disease who are breastfed are less likely to experience progression to stricturing or penetrating disease, while other environmental factors, like smoking, are linked to adverse events among this population, according to research published in The American Journal of Gastroenterology. Ashwin N. Ananthakrishnan, MD, MPH, of the division of gastroenterology at Massachusetts General Hospital, and colleagues examined […]

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Research

Family history tied to nearly eightfold increased CRC risk for IBD patients

Patients with IBD who have a first-degree relative with a history of colorectal cancer have a higher risk for also being diagnosed with that cancer.

Patients with inflammatory bowel disease who have a first-degree relative with a history of colorectal cancer have a higher risk for also being diagnosed with that cancer, according to research published in Clinical Gastroenterology and Hepatology. N. Jewel Samadder, MD, MSc, of the division of Gastroenterology and Hepatology at the Mayo Clinic in Phoenix, Arizona, and colleagues wrote that although […]

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News

Colonoscopies: Why are they performed and when should you have them?

Posted: September 7 2018

A recent study found up to 20 per cent of all procedures performed in a New South Wales hospital were either unhelpful or harmful. Some of these, which included performing a colonoscopy for constipation, were becoming more prevalent. A colonoscopy is a test where a small, flexible tube is inserted into the bowel to check for abnormalities […]

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