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Find Support

CCA’s primary objective is to provide support services, advice and encouragement for people living with inflammatory bowel disease. Click on the links below to find out more about our various support services.

 

On this page:

IBD Helpline

Individual help, information and guidance on Crohn’s disease or ulcerative colitis, provided by our helpline coordinator. Call 1800 138 029 and press option 1 to access this service during business hours, Monday to Friday AEST.

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Support Groups

Crohn’s and Colitis support group meetings provide a safe environment where individuals impacted by IBD can express themselves openly and receive support and understanding from others with similar experiences. All members, including the facilitator are impacted by Crohn’s or ulcerative colitis (IBD) in some way.

Upcoming support group meetings are listed on our Support Groups page.

Please read our privacy policy.

For more information, or to register your interest in attending a support group, or starting a group in your area, please phone 1800 138 029 or email.

Find a support group in your area

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IBD Information Forums

Crohn’s & Colitis Australia’s IBD information forums provide much needed specialised information for people diagnosed with inflammatory bowel disease, their families and carers. Particularly useful for those recently diagnosed, the forums offer participants education and support and strategies to identify and establish links with the existing local community support structures.

Upcoming Forums

Resources from Past Forums

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FOR PARENTS, KIDS AND TEENS

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For Parents

Being diagnosed with IBD is challenging for anyone – but having a young child diagnosed is distressing and daunting for the whole family. There are usually hundreds of questions:

  • Why did my child get this?
  • Is it something we did (or didn’t) do?
  • How is IBD treated?
  • What are our options?
  • Will she have a normal life?
  • What does the future hold for him?
  • Will my other children also get this disease?
  • What is IBD anyway?

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For Teens

Similarly, being a teenager is hard enough without having to deal with the challenges of inflammatory bowel disease (IBD). Both the symptoms of Crohn’s disease and ulcerative colitis, and the side-effects of many of the treatments, seem designed to cause maximum embarrassment and disruption to every aspect of your life.

Weight loss, fatigue, joint pain, abdominal pain, diarrhoea, surgical scarring, extended hospital stays, delayed puberty and/or corticosteroid puffiness; it’s no wonder that many young people with IBD feel isolated, frustrated, stressed, anxious or depressed.

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You and your Family are not Alone

Meeting others who are going through similar challenges, learning more about the illness and taking a proactive interest in treatment can make a big difference in your life. CCA has a range of resources and services that can help you including:

Browse our website, read about other people’s experiences and call our office (1800 138 029) to have information sent directly to you.

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GP Audit and Education Module

Click here to find out more.

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The latest news and Research

News

Telling my boss about my invisible condition

Posted: February 27 2020

In 1998, during my last year of high school, I began going to the bathroom up to 12 times a day. My weight dropped quickly—five pounds, then 20—and I felt tired, had diarrhea constantly, and my stomach was always killing me. Both my mom and my doctor thought this was a reaction to the stress […]

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News

Guidance issued for food intake in inflammatory bowel disease

Posted: February 26 2020

Arie Levine, M.D., from the Wolfson Medical Center at Tel Aviv University in Israel, and colleagues reviewed the current evidence to provide expert opinion on specific dietary components, food groups, and food additives for control and preventing relapse of IBD. The authors note that for all food groups except pasteurized dairy consumption, consensus was achieved. […]

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News

Ulcerative colitis: bacteria findings raise hopes for new treatment

Posted: February 26 2020

While a number of medicines can help manage the condition, ulcerative colitis can only be cured by removing the colon. However, about half of those who have this surgery go on to have inflammation in the area of the small intestine that is reconstructed into a pouch to serve as a rectum. Such inflammation is […]

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News

Striking differences in patients’ and physicians’ treatment goals and disease management expectations

Posted: February 20 2020

The IBD Global Assessment of Patient and Physician Unmet Needs Survey (IBD GAPPS) captured insights and perspectives from more than 2,000 patients and 600 physicians, exploring the physician-patient relationship, how patients and physicians define remission, their treatment expectations and levels of satisfaction with current therapies, as well as the impact of ulcerative colitis (UC) and […]

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News

Chronic inflammatory disease expenditures nearly double

Posted: February 18 2020

“Compared to healthy controls, we know that individuals with inflammatory bowel disease experience higher health care costs,” Benjamin Click, MD, says. “What we have also seen from prior studies is that historically, health care utilization such as hospitalizations and surgery accounted for the majority of expenditures.” To assess changes in cost of IBD care over time, Click […]

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News

Don’t hate your guts – heal them

Posted: February 18 2020

Each one of us carries about 38 trillion bacteria around with us in our gut every day – if you wanted to count them all, it would take you more than a million years. How can such a veritable zoo of microbes reside peacefully in our guts without triggering our immune systems to attack them, […]

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