Skip to main content

Connect with CCA

Connect with CCA

CCA exists to make life more livable for you and others who have IBD. Our programs and services are designed to help you manage your symptoms, give you relevant information, offer opportunities for you to connect with others in your community, and make you feel supported and less alone.

On this page:

IBD Helpline – 1800 138 029

The IBD Helpline is a free service that offers support, information, advice, and referrals to members and non-members alike. It is staffed by a highly experienced IBD counsellor who provides professional support and advice.

Back to top

iConnect

We’re here to help you connect with reliable information and resources to answer any IBD questions. Our registered IBD nurses and highly-trained support crew are available for a confidential online chat should you, a family member or friend, need support.

Visit iconnect.crohnsandcolitis.com.au to connect with our support crew.

Back to top

IBD Forums

Our IBD information forums provide much-needed specialised information for people with IBD, as well as their families and carers. Particularly useful for those recently faced with an IBD diagnosis, the forums offer participants latest information, resources, support, and connections with the local community.

Back to top

IBD Support Groups

Our support group meetings provide a safe and supportive environment where those affected by IBD—including parents and families—can express themselves openly, and receive support and understanding from others in similar situations.

Visit our Support page to start finding a group nearest you.

Back to top

Youth Camps

Many adolescents with IBD feel isolated from their peers and are at risk of depression and anxiety. Our youth camps bring together teenagers living with IBD for three days of fun, adventure, and activities. We give them a chance to be with peers who share similar experiences. While some are reluctant at the start, by the end of the three days, nearly all of them leave with new friends and a renewed sense of self.

Back to top

Awareness

Increasing community awareness about IBD and about our work at a local and national level is vital to achieving our mission.

Back to top

IBD in the media

A key strategy for raising awareness has been through sharing positive news stories in newspapers, on television, on radio, and on the Internet. In recent years, we have been attracting growing media coverage. As more and more Australians become increasingly aware of IBD, the barriers to open communication will diminish, and it will become easier to talk about the condition without embarrassment or fear of stigma.

Back to top

Can’t Wait Program

If you’ve been diagnosed with Crohn’s disease or ulcerative colitis, as a CCA member you are entitled to CCA’s Can’t Wait Card. This valuable card offers you access to toilet facilities of participating businesses. Equally important, it educates businesses about IBD and its effects on those who have it, and gives them an opportunity to help.

A complete list of all of our Can’t Wait Program affiliates is available online at www.cantwait.net.au.

Back to top

IBD Quality of Care Program

As part of our mission of improving the lives of those with ulcerative colitis and Crohn’s disease, in 2013 we commissioned PricewaterhouseCoopers Australia (PwC) to update existing IBD national health economic and prevalence data. This report, Improving Inflammatory Bowel Disease Care Across Australia, identified significant geographical variations in access to quality care, and found that the current model of care was inequitable. It recommended that CCA seek funding to assess existing services in hospitals across Australia. In 2014, we obtained federal government funding as well as the endorsement of the peak learned bodies representing key health stakeholders to develop National Standards of Care, and to perform a national IBD Audit. The aim of this two-year project was to improve IBD care for patients in Australia by:

  • Examining the provision and organisation of IBD care throughout Australia; and
  • Providing an evidence-based case for increased IBD resources that is consistent with national needs, is supported by the key stakeholder groups, and aligns with government policy objectives. The final report was published in 2016.

Back to top

Fundraising

Our work would not be possible without the generous support of donors, members, and businesses. We hold a variety of Crohn’s disease fundraising events every year, focused on raising awareness and improving the lives of those living with this invisible disease.

Back to top

Donations

We accept donations year-round, and we use the funds to deliver services to the community. Charitable donations can be made online through our website. All donations over $2 are tax-deductible.

Back to top

Changing Lives Challenge

Run, swim, or ride for CCA! Join CCA’s Changing Lives Challenge and get fit while doing it. The funds raised go towards our youth camps, information forums, support groups, online services, and Can’t Wait Program.

Back to top

Workplace Giving

Workplace giving is a simple and effective way for employees to donate regularly to CCA. It is voluntary and simply involves employees nominating CCA as their charity and specifying a monthly amount to be donated through their payroll system. This can be just a couple of dollars to several hundreds per month.

CCA is a registered charity with the Charities Aid Foundation’s Workplace Giving program.

Back to top

Regular giving

Regular giving is an easy way to support us on an ongoing basis. Each month, your nominated amount is automatically debited from your credit card.

Back to top

In memoriam

While the loss of a loved one is a sad occasion, it is also an opportunity to give hope to thousands of Australians who are living with chronic conditions, including IBD. Families can request that donations be made to CCA in lieu of flowers.

Back to top

Bequests

Leaving a gift in your will to Crohn’s & Colitis Australia will help us make a positive difference to people with Crohn’s disease and ulcerative colitis, their family, friends and carers. For more information on fundraising, please visit our website, e-mail us at info@crohnsandcolitis.com.au or phone us at 1800 138 029.

Back to top

The latest news and Research

News

Inflammatory bowel disease and type I diabetes increase chances of developing rheumatoid arthritis

Posted: June 18 2019

RA is a chronic inflammatory disease that affects the joints, causing pain and disability. It can also affect internal organs. RA is more common in older people, but there is also a high prevalence in young adults, adolescents and even children, and it affects women more frequently than men. IBD is an umbrella term used […]

Read more

News

Cannabis use in inflammatory bowel disease: new surveys announced

Posted: June 18 2019

Inflammatory Bowel Disease (IBD) is an umbrella term describing chronic and relapsing inflammatory diseases of the gastrointestinal tract, including ulcerative colitis and Crohn’s disease. Affected individuals experience abdominal pain, weight loss, diarrhoea and bleeding with a high risk of developing colorectal and small bowel cancers. It is a debilitating condition that often significantly affects a […]

Read more

News

A single gut enterotype linked to both inflammatory bowel disease and depression

Posted: June 18 2019

In 2012, Professor Jeroen Raes (VIB-KU Leuven Center for Microbiology) launched the Flemish Gut Flora Project. Sequencing fecal samples of over 3,000 healthy volunteers, Prof. Raes and his team defined the boundaries of a normal, health-associated gut microbiota. Next, the team turned to patient groups to identify microbiome alterations associated with diseases. Recently, they described […]

Read more

News

Possible targets to help tackle Crohn’s disease

Posted: June 18 2019

The research has focused on different types of cells called macrophages, which are part of our immune system and are found in most tissues, where they patrol for potential harmful organisms and destroy them. In inflammatory diseases, like Crohn’s, macrophages mediate the inflammatory destruction of the gut. Just how the tissue reacts (inflammation or suppression) […]

Read more

Personal Story

Illness can morph you without your consent

Posted: June 13 2019

When I was first diagnosed, I was told that Crohn’s disease was chronic. I looked that word up. Chronic: “Persisting for a long time or constantly recurring.” I shrugged, “No big deal” I thought. The idea of a long time didn’t compute when I was in my early twenties. Because “a long time” doesn’t really […]

Read more

News

Public toilets letting us down

Posted: June 4 2019

In his 1937 essay What is a City?, historian, sociologist and architecture critic Lewis Mumford described the city as a theatre — a space in which the social drama of urban life could play out. It’s unlikely he envisioned the daily drama of parents with young children, the sick, and the weak-of-bladder looking in vain […]

Read more