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Connect with CCA

Connect with CCA

CCA exists to make life more livable for you and others who have IBD. Our programs and services are designed to help you manage your symptoms, give you relevant information, offer opportunities for you to connect with others in your community, and make you feel supported and less alone.

On this page:

IBD Helpline – 1800 138 029

The IBD Helpline is a free service that offers support, information, advice, and referrals to members and non-members alike. It is staffed by a highly experienced IBD counsellor who provides professional support and advice.

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iConnect

We’re here to help you connect with reliable information and resources to answer any IBD questions. Our registered IBD nurses and highly-trained support crew are available for a confidential online chat should you, a family member or friend, need support.

Visit iconnect.crohnsandcolitis.com.au to connect with our support crew.

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IBD Forums

Our IBD information forums provide much-needed specialised information for people with IBD, as well as their families and carers. Particularly useful for those recently faced with an IBD diagnosis, the forums offer participants latest information, resources, support, and connections with the local community.

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IBD Support Groups

Our support group meetings provide a safe and supportive environment where those affected by IBD—including parents and families—can express themselves openly, and receive support and understanding from others in similar situations.

Visit our Support page to start finding a group nearest you.

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Youth Camps

Many adolescents with IBD feel isolated from their peers and are at risk of depression and anxiety. Our youth camps bring together teenagers living with IBD for three days of fun, adventure, and activities. We give them a chance to be with peers who share similar experiences. While some are reluctant at the start, by the end of the three days, nearly all of them leave with new friends and a renewed sense of self.

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Awareness

Increasing community awareness about IBD and about our work at a local and national level is vital to achieving our mission.

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IBD in the media

A key strategy for raising awareness has been through sharing positive news stories in newspapers, on television, on radio, and on the Internet. In recent years, we have been attracting growing media coverage. As more and more Australians become increasingly aware of IBD, the barriers to open communication will diminish, and it will become easier to talk about the condition without embarrassment or fear of stigma.

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Can’t Wait Program

If you’ve been diagnosed with Crohn’s disease or ulcerative colitis, as a CCA member you are entitled to CCA’s Can’t Wait Card. This valuable card offers you access to toilet facilities of participating businesses. Equally important, it educates businesses about IBD and its effects on those who have it, and gives them an opportunity to help.

A complete list of all of our Can’t Wait Program affiliates is available online at www.cantwait.net.au.

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IBD Quality of Care Program

As part of our mission of improving the lives of those with ulcerative colitis and Crohn’s disease, in 2013 we commissioned PricewaterhouseCoopers Australia (PwC) to update existing IBD national health economic and prevalence data. This report, Improving Inflammatory Bowel Disease Care Across Australia, identified significant geographical variations in access to quality care, and found that the current model of care was inequitable. It recommended that CCA seek funding to assess existing services in hospitals across Australia. In 2014, we obtained federal government funding as well as the endorsement of the peak learned bodies representing key health stakeholders to develop National Standards of Care, and to perform a national IBD Audit. The aim of this two-year project was to improve IBD care for patients in Australia by:

  • Examining the provision and organisation of IBD care throughout Australia; and
  • Providing an evidence-based case for increased IBD resources that is consistent with national needs, is supported by the key stakeholder groups, and aligns with government policy objectives. The final report was published in 2016.

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Fundraising

Our work would not be possible without the generous support of donors, members, and businesses. We hold a variety of Crohn’s disease fundraising events every year, focused on raising awareness and improving the lives of those living with this invisible disease.

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Donations

We accept donations year-round, and we use the funds to deliver services to the community. Charitable donations can be made online through our website. All donations over $2 are tax-deductible.

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Changing Lives Challenge

Run, swim, or ride for CCA! Join CCA’s Changing Lives Challenge and get fit while doing it. The funds raised go towards our youth camps, information forums, support groups, online services, and Can’t Wait Program.

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Workplace Giving

Workplace giving is a simple and effective way for employees to donate regularly to CCA. It is voluntary and simply involves employees nominating CCA as their charity and specifying a monthly amount to be donated through their payroll system. This can be just a couple of dollars to several hundreds per month.

CCA is a registered charity with the Charities Aid Foundation’s Workplace Giving program.

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Regular giving

Regular giving is an easy way to support us on an ongoing basis. Each month, your nominated amount is automatically debited from your credit card.

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In memoriam

While the loss of a loved one is a sad occasion, it is also an opportunity to give hope to thousands of Australians who are living with chronic conditions, including IBD. Families can request that donations be made to CCA in lieu of flowers.

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Bequests

Leaving a gift in your will to Crohn’s & Colitis Australia will help us make a positive difference to people with Crohn’s disease and ulcerative colitis, their family, friends and carers. For more information on fundraising, please visit our website, e-mail us at info@crohnsandcolitis.com.au or phone us at 1800 138 029.

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The latest news and Research

Blog

Top 5 wellbeing tips with Flic

Posted: September 16 2020

Tip 1 Having IBD means that wellbeing needs to be your first priority. You not only deserve great wellbeing anyway because you are a human (not just a set of symptoms), but your body will not tolerate anything less. Tip 2 Breathing techniques can be game changers when used proactively and reactively for IBD. Something […]

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Research

The psychosocial burden of inflammatory bowel disease in adolescents and young adults

This study examined the psychosocial burden of inflammatory bowel disease (IBD) in young people aged 15‐25 years attending a tertiary specialist health centre for adolescents and young adults in Brisbane.

Methods Young people with IBD provided demographic information and psychosocial data via a cross‐sectional self‐report survey. Psychosocial data included the Kessler Psychological Distress Scale (K‐10), Perceived Stress Scale (PSS‐10), Brief Illness Perception Questionnaire (Brief IPQ), World Health Organisation Wellbeing Index (WHO‐5), Pediatric Quality of Life Inventory (PedsQL), Short Quality of Life Questionnaire for IBD (SIBDQ), […]

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Research

Immune cells sculpt circuits in the brain

Brain immune cells, called microglia, protect the brain from infection and inflammation. It turns out that they also sculpt circuits in the developing brain in response to sensory cues.

Immune cells play an unexpected role in fine-tuning the brain’s neural circuits, according to research published in September, 2020 in Neuron. The immune cells that reside there, known as microglia, not only protect the brain from infection and inflammation, they also help physically sculpt circuits in the developing brain. The new work demonstrates that microglia also […]

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Blog

The best strength training workout is surprisingly easy

Posted: September 14 2020

As a fitness columnist, I get lots of questions about the best way to work out. Many of these queries are about strength training: How many workouts per week are necessary? Do I need to lift weights, or are body weight exercises like pushups and lunges enough? Is it better to do a few repetitions […]

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News

Lack of treatment compromising NZ patients

Posted: September 10 2020

Senior Clinical Nurse specialists caring for some of New Zealand’s sickest bowel disease patients say the Government has turned its back on their patients by refusing to fund routine, mainstream treatments that have been in use around the world for the past several years. They say that in denying treatment for these severely ill patients […]

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News

CCA IBD PhD Scholarship

Posted: September 10 2020

This scholarship makes a provision of $25,000 per annum for up to (3) years full-time supporting CCA’s strategic priority of building inflammatory bowel disease (IBD) research capacity in Australia whilst we search for a cause or cure for IBD. The award is designed for candidates at an early stage in their careers, for example (but […]

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