Skip to main content

Connect with CCA

Connect with CCA

CCA exists to make life more livable for you and others who have IBD. Our programs and services are designed to help you manage your symptoms, give you relevant information, offer opportunities for you to connect with others in your community, and make you feel supported and less alone.

On this page:

IBD Helpline – 1800 138 029

The IBD Helpline is a free service that offers support, information, advice, and referrals to members and non-members alike. It is staffed by a highly experienced IBD counsellor who provides professional support and advice.

Back to top

iConnect

We’re here to help you connect with reliable information and resources to answer any IBD questions. Our registered IBD nurses and highly-trained support crew are available for a confidential online chat should you, a family member or friend, need support.

Visit iconnect.crohnsandcolitis.com.au to connect with our support crew.

Back to top

IBD Forums

Our IBD information forums provide much-needed specialised information for people with IBD, as well as their families and carers. Particularly useful for those recently faced with an IBD diagnosis, the forums offer participants latest information, resources, support, and connections with the local community.

Back to top

IBD Support Groups

Our support group meetings provide a safe and supportive environment where those affected by IBD—including parents and families—can express themselves openly, and receive support and understanding from others in similar situations.

Visit our Support page to start finding a group nearest you.

Back to top

Youth Camps

Many adolescents with IBD feel isolated from their peers and are at risk of depression and anxiety. Our youth camps bring together teenagers living with IBD for three days of fun, adventure, and activities. We give them a chance to be with peers who share similar experiences. While some are reluctant at the start, by the end of the three days, nearly all of them leave with new friends and a renewed sense of self.

Back to top

Awareness

Increasing community awareness about IBD and about our work at a local and national level is vital to achieving our mission.

Back to top

IBD in the media

A key strategy for raising awareness has been through sharing positive news stories in newspapers, on television, on radio, and on the Internet. In recent years, we have been attracting growing media coverage. As more and more Australians become increasingly aware of IBD, the barriers to open communication will diminish, and it will become easier to talk about the condition without embarrassment or fear of stigma.

Back to top

Can’t Wait Program

If you’ve been diagnosed with Crohn’s disease or ulcerative colitis, as a CCA member you are entitled to CCA’s Can’t Wait Card. This valuable card offers you access to toilet facilities of participating businesses. Equally important, it educates businesses about IBD and its effects on those who have it, and gives them an opportunity to help.

A complete list of all of our Can’t Wait Program affiliates is available online at www.cantwait.net.au.

Back to top

IBD Quality of Care Program

As part of our mission of improving the lives of those with ulcerative colitis and Crohn’s disease, in 2013 we commissioned PricewaterhouseCoopers Australia (PwC) to update existing IBD national health economic and prevalence data. This report, Improving Inflammatory Bowel Disease Care Across Australia, identified significant geographical variations in access to quality care, and found that the current model of care was inequitable. It recommended that CCA seek funding to assess existing services in hospitals across Australia. In 2014, we obtained federal government funding as well as the endorsement of the peak learned bodies representing key health stakeholders to develop National Standards of Care, and to perform a national IBD Audit. The aim of this two-year project was to improve IBD care for patients in Australia by:

  • Examining the provision and organisation of IBD care throughout Australia; and
  • Providing an evidence-based case for increased IBD resources that is consistent with national needs, is supported by the key stakeholder groups, and aligns with government policy objectives. The final report was published in 2016.

Back to top

Fundraising

Our work would not be possible without the generous support of donors, members, and businesses. We hold a variety of Crohn’s disease fundraising events every year, focused on raising awareness and improving the lives of those living with this invisible disease.

Back to top

Donations

We accept donations year-round, and we use the funds to deliver services to the community. Charitable donations can be made online through our website. All donations over $2 are tax-deductible.

Back to top

Changing Lives Challenge

Run, swim, or ride for CCA! Join CCA’s Changing Lives Challenge and get fit while doing it. The funds raised go towards our youth camps, information forums, support groups, online services, and Can’t Wait Program.

Back to top

Workplace Giving

Workplace giving is a simple and effective way for employees to donate regularly to CCA. It is voluntary and simply involves employees nominating CCA as their charity and specifying a monthly amount to be donated through their payroll system. This can be just a couple of dollars to several hundreds per month.

CCA is a registered charity with the Charities Aid Foundation’s Workplace Giving program.

Back to top

Regular giving

Regular giving is an easy way to support us on an ongoing basis. Each month, your nominated amount is automatically debited from your credit card.

Back to top

In memoriam

While the loss of a loved one is a sad occasion, it is also an opportunity to give hope to thousands of Australians who are living with chronic conditions, including IBD. Families can request that donations be made to CCA in lieu of flowers.

Back to top

Bequests

Leaving a gift in your will to Crohn’s & Colitis Australia will help us make a positive difference to people with Crohn’s disease and ulcerative colitis, their family, friends and carers. For more information on fundraising, please visit our website, e-mail us at info@crohnsandcolitis.com.au or phone us at 1800 138 029.

Back to top

The latest news and Research

News

Common mistakes that can make ulcerative colitis worse

Posted: October 22 2019

When you experience an ulcerative colitis flare, it’s easy to assign blame, be it on last night’s spicy dinner or on that extra-large coffee. In actuality, flares are unpredictable — there are no proven triggers or foolproof ways to prevent them. The most important thing to do if you have ulcerative colitis? “Take your medications as prescribed […]

Read more

News

Healthiest gut bacteria with plant-based or Mediterranean diet

Posted: October 21 2019

The study included four different groups of people: the population at large; people suffering from the chronic intestinal inflammatory disorder called Crohn’s disease; people with another similar gut disorder called ulcerative colitis; and people with irritable bowel syndrome (IBS). This helped them describe the individual’s microbial pattern. This was then correlated with the results of […]

Read more

News

Fetal gut has more well-developed immune capabilities than previously thought

Posted: October 17 2019

Liza Konnikova and her colleagues applied advanced cellular and genomic analyses to study the makeup of the immune system in gut tissues from 14- to 23-week-old fetuses and infants undergoing surgery to correct gut defects. “We were surprised to find that almost complete immune capacity in the gut had developed as early as 14 weeks, […]

Read more

Personal Story

Raising awareness of Crohn’s disease

Posted: October 17 2019

I recently met a mum who wanted to share her story with me. As I sat opposite her in the coffee shop I could feel her pain, even though she was smiling and had a twinkle in her eye. As well as feeling her pain, I could feel her passion too. She was telling me […]

Read more

Personal Story

Boy raises money to give young Crohn’s sufferers a less painful option

Posted: October 17 2019

Every six months, Cohen Martyniuk braces himself for a three-day ritual of pain that comes before he gets a colonoscopy to check on his Crohn’s disease. “I have to stay home, because what they do is give you a laxative and you basically go to the washroom and you sit there all day, and it’s […]

Read more

News

Health Benefits of Practicing Gratitude According to Science

Posted: October 15 2019

The health benefits of expressing gratitude are many, and some might surprise you. Scholars, spiritual leaders, and scientist throughout history have deliberated on gratitude. More recently, the scientifically-validated benefits of gratitude are better understood. Regardless of who you are, or the circumstances of your life, the health benefits of gratitude are undeniable. There are numerous gratitude […]

Read more