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Personal Story

Personal Story

Raising awareness of Crohn’s disease

Posted: October 17 2019

I recently met a mum who wanted to share her story with me. As I sat opposite her in the coffee shop I could feel her pain, even though she was smiling and had a twinkle in her eye. As well as feeling her pain, I could feel her passion too. She was telling me […]

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Personal Story

Boy raises money to give young Crohn’s sufferers a less painful option

Posted: October 17 2019

Every six months, Cohen Martyniuk braces himself for a three-day ritual of pain that comes before he gets a colonoscopy to check on his Crohn’s disease. “I have to stay home, because what they do is give you a laxative and you basically go to the washroom and you sit there all day, and it’s […]

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Personal Story

Why It’s Okay to Grieve the Loss of Your Colon

Posted: September 25 2019

When you’re diagnosed with a chronic illness like ulcerative colitis (UC), it’s important to be in touch with not only your body and how you feel physically but also how you are coping mentally. Before my diagnosis, I had never heard of inflammatory bowel disease. But at the age of 22, I began experiencing sharp stomach […]

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Personal Story

Student with stoma accused of taking drugs

Posted: September 11 2019

Amber Davies, 21, from Builth Wells, has a stoma after being diagnosed with ulcerative colitis aged 13. While on a night out in Birmingham, she was “grabbed” by a bouncer after coming out of the disabled toilet. Wetherspoons said staff apologised for the “confusing situation”. Amber posted an open letter on her Instagram account detailing her experience, saying the […]

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Personal Story

‘Running through ulcerative colitis literally saved my life’

Posted: September 3 2019

For many runners with chronic illnesses, managing their condition in order to continue doing the sport they love can be a challenge. But the benefits they gain from it—a calmer mind, a reduction in stress, for instance—help motivate them to keep pushing forward. But for 37-year-old Annabelle Winters, running through chronic illness hasn’t just given her […]

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How Crohn’s and a cancer scare turned this man into an endurance junkie

Posted: August 15 2019

It’s a typically windy day on St Kilda shorefront in Melbourne, and Quinn Darragh is in “absolute agony”. To make it here, Quinn, a Bondi lifeguard by trade, had to swim 1.5 kilometres, cycle 180 kilometres, and run a literal marathon (that’s 42 kilometres to you and me). That’s just what an Ironman has to […]

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News

Crippling anxiety, Crohn’s disease and utter despair (audio)

Posted: June 28 2019

Breaking Badly; How I Worried Myself Sick is her story. Georgie Dent has a candid chat with ABC Radio National presenter Patricia Karvelas in the Drawing Room. Listen to interview at https://www.abc.net.au/radionational/programs/drawingroom/georgie-dent/11229030

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Personal Story

Illness can morph you without your consent

Posted: June 13 2019

When I was first diagnosed, I was told that Crohn’s disease was chronic. I looked that word up. Chronic: “Persisting for a long time or constantly recurring.” I shrugged, “No big deal” I thought. The idea of a long time didn’t compute when I was in my early twenties. Because “a long time” doesn’t really […]

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News

Dancer reveals battle with Crohn’s disease

Posted: May 14 2019

Amy Dowden shot to fame when she joined the Strictly Come Dancing professional line-up two years ago. She doesn’t ‘want any sympathy’, emphasising that her condition doesn’t ‘define’ her. Opening up on why she chose to keep her condition from the Strictly crew, she said: ‘When I got my job on Strictly Come Dancing, I didn’t want to […]

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Martial arts fighter battles back to fitness after 38 bowel surgeries

Posted: April 28 2019

Kharina Kharran, from Brighton in East Sussex, trains in martial arts six times per week and has even entered cage fighting competitions. But the 41-year-old has a colostomy bag permanently attached to her stomach. Kharina became fascinated with martial arts at the age of nine after being inspired by Bruce Lee movies, but has struggled […]

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