Skip to main content

Personal Story

Personal Story

Guilty feelings when using the disabled toilets

Posted: April 21 2019

The 63-year-old was first diagnosed with advanced bowel cancer in 2014, and underwent an ileostomy as part of his treatment. In the podcast In Conversation With George Alagiah: A Bowel Cancer UK Podcast, he said: ‘I used to find difficult – I had a stoma but I didn’t look disabled, and I would be turning the key […]

Read more

Personal Story

Dancer wrongly diagnosed with anorexia when her weight plummeted

Posted: April 13 2019

A professional model and dancer has today told how it took doctors seven years to diagnose her with Crohn’s disease. Natalie-Amber Freegard, of Swindon, began suffering symptoms of the agonising digestive condition when she was 17. Doctors repeatedly dismissed her stomach pains and extreme weight loss, which saw her plummet to just five stone, as anorexia. […]

Read more

Personal Story

Ali Jawad in World Para Powerlifting World Cup

Posted: April 4 2019

Jawad says he was diagnosed with Crohn’s Disease, an inflammatory bowel condition, on the eve of his Paralympic 2008 debut in Beijing, where he competed but finished ninth. He retired soon after aged 19 and in 2010 had major surgery but “decided in my head if I survived it I was going to go for 2012”. […]

Read more

Personal Story

How the Expectation for Men to Be Tough Affected My Crohn’s Disease

Posted: March 22 2019

Boys are tough; boys don’t cry; boys play football. Pain is not something a boy experiences unless he is mortally wounded. Tough it out. Another child of many millions growing up with a gendered brain. Afraid of myself, my own emotions. Afraid of expressing weakness and pain. We’ve shamed the admittance of pain and idolized […]

Read more

Personal Story

Woman with Crohn’s disease ‘learned to love’ her scars

Posted: March 13 2019

Natalie who has Crohn’s disease has asked photographers not to remove her scars from pictures when she works as a model. Now she wants to encourage others to be body positive. Watch her story at https://www.bbc.com/news/av/uk-england-wiltshire-47495346/woman-with-crohn-s-disease-learned-to-love-her-scars

Read more

Personal Story

Why Thousands of People Are Sharing Their Ostomy Bags on Social Media

Posted: February 21 2019

It’s in honor of Seven Bridges, a young boy who died by suicide. “You’re a freak!” “What’s wrong with you?”“You’re not normal.” These are all things kids with disabilities might hear at school and on the playground. According to research, children with disabilities were two to three times more likely to be bullied than their nondisabled peers. […]

Read more

Personal Story

Soul Food: The Ayurvedic Diet and How It Helped Me Manage IBD

Posted: January 31 2019

When I was 16, I was diagnosed with Crohn’s disease and was prescribed medication to treat it. Even with medication, I dealt with flares that caused severe bleeding, debilitating pain, nausea, vomiting, and muscle cramps, among other symptoms. For three years my mother and I visited one specialist after another on the East Coast searching for answers. When a doctor […]

Read more

Personal Story

Crohn’s disease sufferer recovering from burst bowel is now a champion weightlifter

Posted: January 31 2019

Manny Singh Tura, 27, weighing only seven-and-a-half stone (48kg) to begin with, shed three stone (19kg) in just two months after his bowel burst in December 2016. He had a foot-long (30cm) section of his bowel removed and needed an ileostomy bag for months, but has since returned to health and broken a regional weightlifting […]

Read more

News

Photos of ‘Moon Face’ on Social Media

Posted: December 12 2018

“Moon face,” or the round face some people get while using steroids like prednisone, is a common and sometimes difficult side effect of chronic illness. Though opening up about how hard it can be when your face changes shape isn’t always easy, many chronic warriors have taken to Twitter to show off their own moon face […]

Read more

News

Cannabis easing their chronic pain. Now their father is facing jail

Posted: December 12 2018

After years watching his daughters Morgan and Ariel suffer from the chronic auto-immune disease Crohn’s, Stephen Taylor decided to research medical cannabis. “A couple of times there I carried Morgan into hospital weighing around 32 kilograms — actually carrying her in my arms and crying.” Morgan, 21, and Ariel, 25, have both been repeatedly hospitalised […]

Read more