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Personal Story

Why I put my Crohn’s on film

Posted: June 4 2020

In order to raise awareness of Crohn’s disease, 17-year-old Matty Fisher from Mill Hill has made a short film, Life Goes On, documenting his own struggle with the debilitating disease. He was just 14 when he started experiencing symptoms, and soon received the diagnosis. Crohn’s is a type of inflammatory bowel disease (IBD), characterised by the […]

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Stopping the stigma and normalising the stoma

Posted: June 3 2020

A young woman in regional South Australia is trying to change the conversation around bowel disease in her local community, after being diagnosed with Ulcerative Colitis. Riverland resident Aleysha Lange said she was a regular 20-year-old who enjoyed playing netball, reading, hanging out with friends and going to work. But since her bowel disease diagnosis […]

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Kathleen Baker didn’t let Crohn’s block her olympic dream – now she’s ready for another

Posted: May 28 2020

When swimmer Kathleen Baker started shedding pounds at the age of 12, she knew something wasn’t right, but was hesitant to admit it. She was already an elite athlete at that point with not much weight to lose. “I ran fevers for weeks and weeks on end,” Baker said, “I had pretty much every gastrointestinal […]

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You’ve given UC your best. Is it time for surgery?

Posted: April 25 2020

Everyone has their limit, and for Kacy Holloway, she reached it after five years of unrelenting and exhausting symptoms of ulcerative colitis (UC). “I had been on every medication approved for UC and had even gone through a clinical trial and failed,” says Holloway, 22, who lives in Waco, TX. “I was missing school and […]

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When Crohn’s disease sparks depression

Posted: April 23 2020

Getting diagnosed with Crohn’s disease at age 16 was the last thing Cristina Tarankow expected or wanted. “It was all very difficult as a teenager—throwing up, losing weight—and I thought at first it was probably an eating disorder,” says the now 29-year-old Tarankow, who lives in Los Angeles. Instead, she learned her immune system was […]

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Things no one tells you about life with ulcerative colitis

Posted: April 20 2020

1. The intensity of your symptoms might vary over time. The most common ulcerative colitis symptoms are diarrhea containing blood or pus and abdominal pain, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) says. “There’s a lot of cramping,” Cristal Steuer, 38, who was diagnosed with ulcerative colitis while she was in college, tells SELF. You […]

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Can food play a role in reducing inflammation?

Posted: April 9 2020

It’s natural – and often sensible – to turn to medicine to help treat health problems, but have you considered the role food could play too? Physiotherapist Louise Blanchfield was desperate to help improve her husband Richard’s health after he developed a form of inflammatory arthritis that led to him walking with a stick and […]

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Tahlia Giumelli reveals her private battle with Crohn’s

Posted: March 30 2020

MISS Universe Australia finalist Tahlia Giumelli had to reveal her private battle to her new boyfriend, Rabbitohs star Tom Burgess, before they began dating. Giumelli, who will compete for the prestigious crown in Bali in June, lives with Crohn’s disease, which she has battling since 2013. The 24-year-old has been dating Burgess for six months […]

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What it’s really like having a disability no one can see

Posted: March 20 2020

My name is Billie and I live with a chronic invisible illness and disability. I was diagnosed with Ulcerative Colitis (UC) at the age of 20. UC is a gut condition that effects the large intestine; causing bleeding, inflammation and ulcers along the colon. Ulcerative Colitis is also under the umbrella term ‘Inflammatory Bowel Disease (IBD)’ and […]

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Embracing life with an ileostomy bag

Posted: March 14 2020

Melissa Dow will never forget the night when she woke up with excruciating pain in her upper abdomen. Initially, doctors told her she had pancreatitis — and a form of an inflammatory bowel disease known as ulcerative colitis. She spent three years on steroids and other medications to help control the inflammation in her colon. […]

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