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Personal Story

Personal Story

Illness can morph you without your consent

Posted: June 13 2019

When I was first diagnosed, I was told that Crohn’s disease was chronic. I looked that word up. Chronic: “Persisting for a long time or constantly recurring.” I shrugged, “No big deal” I thought. The idea of a long time didn’t compute when I was in my early twenties. Because “a long time” doesn’t really […]

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News

Dancer reveals battle with Crohn’s disease

Posted: May 14 2019

Amy Dowden shot to fame when she joined the Strictly Come Dancing professional line-up two years ago. She doesn’t ‘want any sympathy’, emphasising that her condition doesn’t ‘define’ her. Opening up on why she chose to keep her condition from the Strictly crew, she said: ‘When I got my job on Strictly Come Dancing, I didn’t want to […]

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Personal Story

Martial arts fighter battles back to fitness after 38 bowel surgeries

Posted: April 28 2019

Kharina Kharran, from Brighton in East Sussex, trains in martial arts six times per week and has even entered cage fighting competitions. But the 41-year-old has a colostomy bag permanently attached to her stomach. Kharina became fascinated with martial arts at the age of nine after being inspired by Bruce Lee movies, but has struggled […]

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Personal Story

Guilty feelings when using the disabled toilets

Posted: April 21 2019

The 63-year-old was first diagnosed with advanced bowel cancer in 2014, and underwent an ileostomy as part of his treatment. In the podcast In Conversation With George Alagiah: A Bowel Cancer UK Podcast, he said: ‘I used to find difficult – I had a stoma but I didn’t look disabled, and I would be turning the key […]

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Personal Story

Dancer wrongly diagnosed with anorexia when her weight plummeted

Posted: April 13 2019

A professional model and dancer has today told how it took doctors seven years to diagnose her with Crohn’s disease. Natalie-Amber Freegard, of Swindon, began suffering symptoms of the agonising digestive condition when she was 17. Doctors repeatedly dismissed her stomach pains and extreme weight loss, which saw her plummet to just five stone, as anorexia. […]

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Personal Story

Ali Jawad in World Para Powerlifting World Cup

Posted: April 4 2019

Jawad says he was diagnosed with Crohn’s Disease, an inflammatory bowel condition, on the eve of his Paralympic 2008 debut in Beijing, where he competed but finished ninth. He retired soon after aged 19 and in 2010 had major surgery but “decided in my head if I survived it I was going to go for 2012”. […]

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Personal Story

How the Expectation for Men to Be Tough Affected My Crohn’s Disease

Posted: March 22 2019

Boys are tough; boys don’t cry; boys play football. Pain is not something a boy experiences unless he is mortally wounded. Tough it out. Another child of many millions growing up with a gendered brain. Afraid of myself, my own emotions. Afraid of expressing weakness and pain. We’ve shamed the admittance of pain and idolized […]

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Personal Story

Woman with Crohn’s disease ‘learned to love’ her scars

Posted: March 13 2019

Natalie who has Crohn’s disease has asked photographers not to remove her scars from pictures when she works as a model. Now she wants to encourage others to be body positive. Watch her story at https://www.bbc.com/news/av/uk-england-wiltshire-47495346/woman-with-crohn-s-disease-learned-to-love-her-scars

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Personal Story

Why Thousands of People Are Sharing Their Ostomy Bags on Social Media

Posted: February 21 2019

It’s in honor of Seven Bridges, a young boy who died by suicide. “You’re a freak!” “What’s wrong with you?”“You’re not normal.” These are all things kids with disabilities might hear at school and on the playground. According to research, children with disabilities were two to three times more likely to be bullied than their nondisabled peers. […]

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Personal Story

Soul Food: The Ayurvedic Diet and How It Helped Me Manage IBD

Posted: January 31 2019

When I was 16, I was diagnosed with Crohn’s disease and was prescribed medication to treat it. Even with medication, I dealt with flares that caused severe bleeding, debilitating pain, nausea, vomiting, and muscle cramps, among other symptoms. For three years my mother and I visited one specialist after another on the East Coast searching for answers. When a doctor […]

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