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Call for better diagnosis during Crohn’s and Colitis awareness month


Ann Turnbull shares her story.

Getting a solid diagnosis was a long time coming for Ann Turnbull, 39, of Grays Point.

Born with an abnormal bowel, she had surgery shortly after birth, and was in and out of hospital as a child.

But it wasn’t until the mum of two was 27 years old when she was finally told that she had Crohn’s disease.

May, is Crohn’s and Colitis Awareness Month.

Crohn’s and ulcerative colitis, collectively known as the inflammatory bowel diseases, are Iife-long gastrointestinal disorders that commonly present in adolescence and early adulthood.

The gut becomes inflamed and symptoms can include diarrhoea, abdominal cramps, bleeding, fatigue, weight loss and anaemia.

There is no cure, and if left untreated, over time can lead to an increased risk of colorectal cancer.

Australia has among the highest prevalence in the world, with one in 250 Australians suffering from Crohn’s and ulcerative colitis.

Mrs Turnbull, who has no family history of the disease, simply manages her condition.

“I was treated with low level chemotherapy, and when times get tough I go on a liquid diet,” she said.

Read the full story on Leader News: https://www.theleader.com.au/story/5352956/digesting-the-low-down-on-gut-health/

Posted on: May 4 2018

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Good article. I certainly appreciate this site. Continue the good work!

I was very interested in the article "Good Vs bad bacteria - the bugs responsible for Crohn's disease". I was diagnosed with IBD 6 months ago and after a very bad reaction to Pentasa (but unproven) I was told to wait and try again when the symptoms peaked again. However, I started taking Probiotics each day and (touch wood) I have been in remission for 5 months, with high hopes. I am very interested in the research in this field.

My 16 year old daughter was diagnosed with UC in July 2016 and after 4 flare ups within 12 months and trying different medications, she was prescribed infliximab. This has been the miracle medication for her and am so thankful that she has been able to return to a "relatively normal life", enjoying school and her passion for sports again (bar 8 weekly visits to PMH for inflixmab infusions, routine colonoscopies and mezzaline daily). I had very little knowledge of UC and autoimmunie disease for that matter; and was shellshocked at how debilitating it can be. We are so grateful to have a wonderful gastro and medical team supporting my daughter and of course the impact that inflixmab has had; however know it is still early days and don't want to take anything for granted.


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